Global Study of Primary Immunodeficiency Diseases (PI) — Diagnosis, Treatment and Economic Impact: An Updated report from the Jeffrey Modell Foundation”
The Jeffrey Modell Foundation Centers Network includes: 490 Experct Physicians at 194 Diagnostic, Research, and Referrel Centers, in 64 countries spanning 6 continents. Data was collected from the Center Directors and collated. A peer reviewed manuscript was submitted, accecpted, and published.
Results:
Patients identified with PI defects in the past two years increased 112%
Patients requiring IgG therapy in the past two years increased 107%
Healthcare costs for patients diagnosed and treated one year after diagnosis are reduced by $108,462 patient, per year.
JMF’s new software, the SPIRIT Analyzer ® was tested and 1:583 persons were identified as high risk of PI.
Please click this link to read the manuscript.
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