| alexql | -- 05-07-2007 @ 6:43 PM |
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HI! I need your help. My son is seven years old and he has a low iGG and low iGA. He has already had two sets of ear tubes and also had his tonsils and adenoids removed. Last winter, he ended up in the hospital with pneumonia and they did a sinus CAT scan. They realized that he had severe sinus disease and that may be triggering his asthma. They put him on several rounds of regular antibiotics and iv antibiotics and his sinuses did not improve. The doctors have recommended sinus surgery, but said they feel the success may be limited. I am not sure if I want to put him through this. His immunoligist, pulminologist and peditrican agree that he should do the surgery, but all say that it may not help. If you have any experience in this area, please let me know. I don't know what to do. Thanks!! Alex
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| sharonab | -- 05-10-2007 @ 10:55 PM |
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Hi, Just wondering if the Dr.'s recommended i.v.i.g. therapy for your son? That would help boost his i.g.g. count which in turn would help to reduce the frequency with which his illness occurs. My daughter and I both are on i.v.i.g. therapy and have found it to be a very helpful course of treatment. Naturally, this doesn't entirely eliminate illness, but it does help quite a bit.
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| kib | -- 06-01-2007 @ 10:55 AM |
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Your story sounds eerily familiar except our daughter has CVID (diagnosed at age 10.) At age 8 we did the sinus surgery (postponed bc of pneumonia) but still didn't solve all her problems. (The surgery was day surgery and really wasn't that bad for her.) Sinuses did improve, but the asthma problems continued. GI doc did a pH probe and found she had SEVERE reflux. After another hospitalization for asthma right after the probe, we knew we had to do the Nissen surgery. Things did settle down for a while after that. So, if you have asthma problems, you might consider going to a pediatric GI doc and explain your situation. We did the Prilosec route for about 6 months after the upper GI which gave us the initial diagnosis. We did not expect reflux at all because she never complained of her food backing up. The stomach acid went up the esophagus and into the lungs, thus the irritation and asthma problems. After a rough spring last year, we were diagnosed with CVID (mild.) We haven't been in the hospital since we began prophylactic Bactrim daily. Good luck with your son. There is hope. Don't know if any of this helps, but it's something to think about.
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| Veronica | -- 02-05-2012 @ 4:37 PM |
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XLEAR has helped me immensely. Just go to XLear in any search engine, and the site will come up. It is a nasal spray that is safe for children -- it is a sugar alcohol known as xylitol; you can also read up on that. I was told the same thing; I needed sinus surgery and it may or may not help. I chose not to have it, and so far this spray is keeping sinuses clear. I told my ENT doc, and he agreed it may help, and advised go ahead and try it. It also has grapefruit seed extract in it, which is a natural antibiotic (though not proven to work via FDA, but not harmful) I have been diagnosed w/ CVID recently.
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