|Andrea||-- 11-04-2007 @ 9:41 AM|
Hi I am new here and would love any help that you can give. I have a 3 year old son who has had numerous infections. At a year he had his first Pneumonia diagnosed by x-ray. He never needed hospitalization. Since he was a year he has had 4 more Pneumonia's and at least 8 ear infections a year, always needed antibiotics but never had to stay in the hospital. My question is this. He was getting a bronchoscope for his lungs and because of all the recurrent infections they drew blood. At that time he was as healthy as I have ever seen him. The results came back that his white blood cells were a bit low, IGG 391 (low) IGA .31 (a bit low). Now the immunologist is sending him for vaccine testing and IGG sub class testing. We have only ever had 1 blood test to date. How reliable is the first blood test count of 391? Don't these levels change in the body daily? I am just wanting to understand the likelihood that he could have a immune problem. Thanks for any help you can provide.
This message was updated on 11-16-07 @ 1:43 AM
|Dillon'smom||-- 01-04-2008 @ 2:08 PM|
I saw your post dated 11-4-07, I am sure you got more information about your son by now. By what you wrote, I would bet he has some sort of PID. My son who is now 10 1/2 has had numerous skin infections, strep pnemonia at 15 months and always on antibiotics. We were basically told he was a child with severe eczema and always treated the problem but not the source. He is now doing IVIG and it seems to be helping him and keeping him safer since he builds no antibodies of his own. I know this whole scenerio and its extremely tough on everyone especially our child dealing with it. Let me know if we can at least be email supportive of eachother.
|zach'smom||-- 01-06-2009 @ 9:59 AM|
I have a question for Dillions mom,
what kind of dr did the testing for you and what kind of dr currently txs your son.
We have been to ALL that Columbia, SC has to offer and we are getting ready to go back to Emory but we need to find a local physician to help us.
My son is 9 years old and was diagnosed at 1 1/2 years after several hospitalizations, staph, strep, pnuemonia etc and it has been non stop since 8/2000
|Hyperose||-- 01-11-2009 @ 6:04 PM|
I am 55 years old and was diagnosed with
Igg subclass 1 & 3 deficiencies
The IgG subclass tests are very accurate and you only need to have them done once for diagnoses.
you can email me personally if you want
|Dillon'smom||-- 01-12-2009 @ 12:17 PM|
Sorry it has taken so long for me to answer but I would suggest you find someone in Immunology and Allergy. We happen to get lucky and have the Professor and Chairman of Pediatrics Board Certified here in Reno, Nevada. I believe my prayers were answered after so many years and I had become that nagging parent the Doctors didn't want to deal with anymore because all the questions I had, she couldn't answer them. I think she realized I knew that My Dillon was beyond her knowledge, a total medical egnima to her. You need to go beyond GPs. One local Allergy and Immune Dr. has never seen a patient like Dillon in his ten years.. Had no clue where to send me so after I got the news he was Hypo-IgM, I had to google it and found this board. Started taking him to Stanford and now have his Dr. locally. I wouldn't be embarrased to even talk to an Infectious Disease Doctor as they have seen their share of rare diseases and might have Colleagues or know of Doctors who deal with Immune disorders and their therapies.
He has recently had 8 tubes of blood drawn for another round of IgG total testing and Lympochetes?? because of all his staph infections. The Dr. says that he has other children with severe eczema but not with all the infections. He has had his rounds of allergy for food and environmental and is allergic to wheat, dairy, soy, gluten,peanut,corn, oat, everything outside. He is home schooled by myself to help keep him healthier and My husband and I also give him weekly immune globulin Sub Q. Winter is a hard month, his skin will peel like he is shedding his skin and cannot handle temperature changes well. You can reach me at Lisahamanmathis@aol.com if you want to keep in regular touch. It's important for us and our boys to have support. Hope this helps and good luck, Lisa
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