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Hi I was just wondering if I could find any other families with X-linked lymphproliferative syndrome. Both of my sons were diagnosed with the disease. My younger son passed away 12/23/2002 at the age of 10. My older son is recovering from a bone marrow transplant done 5/2004. He is 14. I am adopted, so I didn't know that anything ran in my family. I carry the gene. I was wondering if any familiy with XLP might be where I came from. I was born 5/24/1971. I would love to know. I want to meet other families too.
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