| admin | -- 02-26-2002 @ 3:12 PM |
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Does IVIG really work?
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| admin | -- 02-26-2002 @ 3:31 PM |
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Believe it or not, it does. The severe infections experienced by the patient are dramatically decreased because the missing antibody protection against infections is restored.
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| Zanggang | -- 03-21-2003 @ 12:32 PM |
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Our son, age 5, started IVIG in December of 2002. He has has 4 infusions and we are absolutely amazed at the results. He is a different child. He has been well for the last 3 months - a record for him. His energy level is amazing. It is so wonderful to see him healthy.
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| edstawarz | -- 10-04-2003 @ 8:33 PM |
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Our son has been getting IVIG continuously for 8 years know and it has been great. He is rarely sick. This is not to say that he hasn't gotten sick and we must be watchful for infections, but it truely does what they say it does. Ed This message was updated on 10-5-03 @ 3:02 PM
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| godsgirl | -- 05-09-2004 @ 11:50 AM |
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I just posted a discussion about this topic. It has not yet been posted because it has to be reviewed by the admin. Look for it. You should be encouraged. It will be under "new topic". I labled it IVIG something.
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| ashinn | -- 10-08-2004 @ 9:10 PM |
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My daughter has been receiving weekly infusions of IVIG at home for over a year now, and she is a much healthier, happier child. She is no longer pale and thin, and she doesn't miss birthday parties, girl scout events, school plays, etc. because of sickness anymore. She gets more sleep because she isn't coughing all night long (we all get more sleep!) and we now dare to plan family outings weeks in advance, something we never used to do.
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| nlj334 | -- 02-21-2005 @ 3:37 AM |
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How does home IVIG work? Currently I go to the hospital every 5 weeks for my infusions but it gets very inconvenient. They say that a physician needs to be present when I have my IVIG. I'm very happy with the good health I've had the past 3 years since I have been getting IVIG infusions but I'd really like to know more about doing it at home. Can you tell me where I can get more information? Thanks!
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| jack | -- 02-22-2005 @ 8:49 PM |
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My son Jack starts IVIG on March 4th. I am so nervous. Is there a good websit I could use to get more information? Our dr. said it will really help him. He also states it is very expensive. How expensive is it? thanks laura
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| MOMA30 | -- 03-21-2005 @ 3:04 PM |
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I HAVE ONE CHILD ON IVIG AND IT SIMPLY AMAZES ME AT HOW DIFFERENT HE IS. HE ISN'T AS GROUCHY AS HE USED TO BE AND HE SETTLES HIMSELF DOWN WHEN HE GETS UPSET. I ALWAYS THOUGHT IT WAS ME. I THINK THIS IS ONE OF THE GREATEST THINGS EVER TO HAPPEN IN MODERN MEDICINE.
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| nlj334 | -- 03-21-2005 @ 3:36 PM |
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IVIG is very expensive and cost prohibitive for anyone without insurance. My hospital bill for each infusion is $15,000. The Bottle of IgG has a wholesale value of $3,000. Because of this high cost and maxing out on my insurance, I go with the HMO that doesn't have mamimums. Nancy
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| Bettie | -- 03-29-2005 @ 10:00 AM |
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My son has hypogammmaglobulinenemia . He was diagnosed at the age of 3. He got his IV's every 4 weeks until he reached the age of 20 and was no longer on his father's insurance. He can't keep a job long enough to get insurance because he gets sick all the time. Employers don't understand. We are applying for disability for the 3rd time. If he is excepted they told us that it would be 2 yrs before he gets medical. His Dr. says it is fatal if he doesn't get his IV's. He is 24 now and hasn't had them for 4 yrs. I'm just wondering if you know what we can do to get them. If he is turned down for disability I have no idea what to do and I'm very worried. I just want to know if anyone has any suggestions. Please e-mail me at Jayne.Schaben@ops.org This message was updated on 4-1-05 @ 9:43 AM
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| mole1440 | -- 03-31-2005 @ 12:14 PM |
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I just wanted to talk about the home infusions. My son has CVID and has been getting his infusions at the hospital clinic since March of 2004. In January, we started getting his infusions at home, using an agency that specializes in home infusions of many types. We love it. It is great to be at home, we do the infusions every 4th Friday after dinner, the infusion lasts about 3-4 hours and then my son goes right to bed. We have found that it eliminates some of the fatigue, headaches, and nausea he was getting before. There are many agencies that do this. Check on-line for your area. All you need is the written order from the doctor and insurance that covers it at home. Good luck!
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| gailabner | -- 04-05-2005 @ 10:55 PM |
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With home infusion either you, someone you know, or a nurse starts the IV. If you opt for a nurse, she may just stay to start the IV or for the whole infusion. I've been doing home IVs for almost 17 years and get my medication and supplies from Caremark. Caremark has a website. The number for the Northbrook, IL office is 1-800-6813
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| ryleebug | -- 06-11-2005 @ 11:43 AM |
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My son is 3 and he has been getting IVIG since Nov and it has been a godsend. The worse part for us has been finding a vein but he had a port put in in Jan and it has been smooth sailing since. Now he has had a few infections since but nearly the number he had before. Personally I LOVE IVIG. It has made my sons life a lot healthier.
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| karintlc | -- 05-23-2008 @ 12:48 PM |
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There are many great home care companies out there. In the New England area you could try contacting T. L. Connections at 978-858-0221 to learn more about how IVIG is given at home. For anyone going to college you can also receive your infusions right at school.
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| Brandy774 | -- 11-10-2008 @ 7:55 PM |
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My daughter who is now 3 1/2 yrs. old was sick ALL the time. She just started the IVIG infusions in May and has not had to be on an antibiotic since. She had not been able to be off from antibiotics until she started the IVIG. We just started doing the Sub Q infusions 3 weeks ago at home. She was getting really bad side effects from the IVIG. So far she has not gotten any with the sub q. So, yes the IVIG infusions work!!!
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| zach'smom | -- 01-06-2009 @ 10:08 AM |
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what kind of side effects did she get from IVIG I am also researching this option for my 9 year old.
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| Brandy774 | -- 01-11-2010 @ 2:12 PM |
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My daughter would get Asceptic Menengitis (swelling of the brain).It was like a migraine, but much worse and would make her vomit. She also had bone pain. We did do the preventative IV Benadryl and Tylenol as well. Our Hematologist thought she might do better with doing SCIG weekly. If you have any questions, feel free to ask away. We've been doing SCIG now for over a year. Take care, Brandy
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