|
|
bubb
|
-- 01-03-2005 @ 4:51 PM
|
| |
:quest:TextTextWe have 2 boys with XLA and our oldest gets sinus infections (3 since about June) and I don't know what to do. Is this something common to PID? If so how have people treated them. Thanks for any help. Desiree
This message was updated on 1-19-05 @ 8:29 PM
|
|
|
jcsaps
|
-- 01-11-2005 @ 11:01 AM
|
| |
My son has sinus trouble continuely. We have found nothing that ever gets rid of it completely. We just keep the kleenexes handy. I am sorry I couldn't help more.
|
|
|
Lori
|
-- 01-18-2005 @ 10:52 AM
|
| |
I think sinus infections are fairly common to PID, at least my type. I have found some ways to try to prevent them and to get over them more quickly that may or may not work for you and your sons. I use an Alkalol nasal rinse every morning in the shower (this is available without a prescription from most pharmacists) -- it's like Listerine for your nose  When I start to feel sinus pressure at the start of inflammation, I use a nasal steroid (Flonase). Then, if it seems like I'm getting increased post-nasal drip that's changing colors and an infection is on it's way, my doctor likes to place me on antibiotics early. My daughter was frequently ill with sinus infections until she was about 6 and had a tonsillectomy; I treat her with the Flonase when she complains of sinus headaches or ear pressure and then give her decongestants. Since she doesn't have a PID, that works for her 9 out of 10 times.
|
|
|
xcepshnlgirl
|
-- 01-19-2005 @ 5:30 PM
|
| |
My son is 10 years old and was diagnosed with IGG, IGA, and IGM deficeincy as well as subclasses. He has chronic reoccurring sinusitis, so I know what you are going through. Antonio has just finishe 40 days of antibiotics and finally clear. He had almost constant sinusitis and frequent nosed bleeds. We use a cool mist vaporizor every night, ayr gel in each nostril morning and night, and ocean spray with bactroban, he is also on zyrtec for the allergic rhynitis. He had tonsils and addenoids out when 4 and sinus surgery last June hense why the healing time is so long this time. He is always treated for sinus infections with 21 days of antibiotics because anaerobic bacteria is harder to fight for immuno supressed patients. Also just in case it pertains, GERD is usually associated with reoccuring sinusitis in kids. My son never complained of his belly but was hoarse, had wet burbs, hiccups, light snoring, and bad breath.... a PH probe showed he refluxed 117 times in 24 hrs all the way into the sinus cavity. My email is xcepshnlgirl@yahoo.com if anyone needs more info. Hope it helps! HUGS!!!
|
|
|
krowland
|
-- 03-10-2005 @ 9:08 AM
|
| |
yes I was told that Having PID can effect your sinus. my son has low IGA Low IGM IGG Sub class. In his case it has effected his sinus's, he has had 3 mayor surgergies on the sinus's, they just rescoped him a couple of weeks ago and the left side was blocked their plan of attack will be scanning the sinus again then possiable surgery again. In my sons case they do these surgergies because they have not been able to control the infections with antbiodicts or nasal sprays and rinses. I know in most cases they do sinus surgery as last resort and that was our case nothing else was helping.
|
|
|
Hyperose
|
-- 01-11-2009 @ 6:08 PM
|
| |
Hi
I have PID,, Igg subclass 1 & 3 deficiencies and get around 3-5 sinus infections a year... I used to get
12-15 ( thats more than one a month)
sinus and other upper respiratory infections are VERY COMMON with those with PID's
What helped me was taking Zyrtec and Nasacort Aq
each day to help keep the allergies under control
Hope this helps a bit
God bless
Rose
|
|
|
Hyperose
|
-- 01-11-2009 @ 6:11 PM
|
| |
I have found out the hard way that some sinus infections are FUNGAL and the sinuses need to be cultured and allowed to " grow" for at least 1-2 weeks for proper diagnosis.
Ask your ENT to culture the sinuses for fungus ( mold)
as I realized we have PID
Primary Immune Deficiencies, AIDS people have ACQUIRED immune deficiencies and BOTH are very prone to FUNGAL INFECTIONS..
I am on an Anti-Fungal right now,
|
|
|
zach'smom
|
-- 01-13-2009 @ 8:22 PM
|
| |
I have a 9 year old that has recurring sinus infections, although I swear it is the same one from years ago that never resolved. The most recent infection he was given 6 weeks of augmentin, and while on it he got strep throat which has been a whole other issue in of itself.
He just had a f/u scan of his sinuses and it looks worse that before the rx
we use a sinus wash, and cool mist humidifer and several prescriptions, too many to wite
is there any suggestions?
also I may be paranoid, but has anyone had or asked to have there liver panel done , is it an unreasonable request when he has been on so many rx and is currently
thanks
Anne
|
|
|
Hyperose
|
-- 01-15-2009 @ 2:00 PM
|
| |
Infections of the sinuses can be FUNGAL
When sinus infection recur and recur and not responding to anti-biotics, CULTURE FOR FUNGUS is necessary,, but the culture has to be marked
" Fungal" and need to be cultured for 1-2 weeks
I have PID and have had numerous, oh too numerous sinus infections to count. but TWO WERE FUNGAL
and only diagnosed with sinus cultures ALLOWED TO GROW FOR AT LEAST 1-2 weeks and MARKED,, TEST FOR FUNGUS
God bless all
Rose
|
|
|
FlaggyGirl
|
-- 02-16-2009 @ 9:42 PM
|
| |
I have been exposed to great amounts of mold, as well as silica dust, and now cannot seem to fight infections once an irritant or allergen gets in my nasal passages. I'm pretty good about using my nasal rinses, but to no avail. Last year, my Endocrinologist tested me and found that my total IgA was around 67, with one reading being 17 or 18. I have yet to find a doctor who knows how to treat this? Any suggestions?
|
|
|
Hyperose
|
-- 02-22-2009 @ 3:17 PM
|
| |
Hi
I used JMF and Immune Disease Foundation to find a doctor in my state who specializes in Immune Deficiencies.
Thank God both places recommended the SAME PHYSICIAN and this doctor is wonderful..
Why not first try to find a doctor who is an expert at PID's and then they can get the proper testing and treatments for your infections/allergies
I just started ALLEGRA and ASTROPRO Spray because the FUNGUS and STAPH Infections in my sinuses were causing severe allergies... so with the anti-fungals and anti-biotics the histimines will now be calmed down as well.
Hope this helps a bit
God blesss and Hugs
Rose
|
|
|
fasulochiro
|
-- 04-17-2009 @ 7:48 AM
|
| |
I have found that persistent sinus problems can also be associated with bowel problems like diarhea or constipation. I use probiotics and avoid dairy and sugar since that makes the sinus problems worse. I also use echinacea, a natural herb, to help increase the immune system naturally. It even comes in a liquid.Text
|
|
|
angelmouse73
|
-- 05-25-2009 @ 2:51 AM
|
| |
My name is Theresa and I am a registered nurse but I am now on disability due to my IGg deficiency.Apparently a poor immune system& caring for sick people does mot mix.I have had &been treated for sinus infections so severe I have been on IV antibiotics,ospitalized with 104 fever.A few months ago I had my 8th sinus surgery-I had what they call inferior windows put in.They remove a small 0 shaped piece of bone in your sinuses at the check to encourage drainage.Most people with immune deficiencies have problems with the cilia(litle nose hairs)& they are the things that help "brush" out bacteria & mucus.Since the surgery I have not had an infection which is some kind of record for me.Talk to your family MD&see if they will send you to an ear nose&throat MD.Good Luck.If you have any questions or concerns please feel free to email me.Theresa Baron
|
|
|
Tschudin
|
-- 08-20-2009 @ 12:09 PM
|
| |
my son was born with a sinus infection. Since he was 8months old his doctor which is one of the experts for pi has had him on antibiotics proflaxty . Meaning he take an antibiotic everyday to help prevent the sinus issues. We also found out there were other thing contributing to the sinus issues. He still get them to this day but way less than he does if not on the antibiotics. Plus his sinus wall is always filled with mucus in the nose and throat . It's a part of his PI . See if you can find an expert from this site. It's well worth talking to someone who specialize in this. I wish I knew about this site when son was born. I went through 45 doctors and 6 hospitals even a children's hospital all in the first 8 months of his life. Before luck just happen to set me in to the lap of Dr. Knutsen and Cardinal Glennon. I hope this helps some.
|
|