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Discussion Topic: Question regarding daycare
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07-31-2006 @ 4:50 PM
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My son was just recently diagnosed with an immune deficiency and he start infusion this next month. I have pulled him out of daycare because I worry about him catching things from other kids. It scares me because he was vaccinated but some of the vaccines his body rejected so he has little to no immunity to some of the vaccines he has been given. I just wonder how many people pull their kids out of daycare for this and if it is smarter to keep him out for a while or till he starts showing signs of improvement? Please if anyone has any advise please let me know. Thanks, Jessica
This message was updated on 8-1-06 @ 4:04 PM
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08-11-2006 @ 12:33 PM
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My son has been receiving IVIG infusions for 12 years (he's 12 right now). I always struggled with the same question but found that he didn't end up with any more or more severe infections than any other child. He started preschool at 3 and went into Kindergarten at 4. As a mother though, you probably have a gut feeling about what is right for you. Follow your instincts.
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08-12-2006 @ 10:15 AM
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I think what you most need to guard against is letting your son's illness take over his and your life. I believe the single worst thing that can happen to someone with a chronic disease is to let it label the individual. My 17-year-old son has CVID. He has attended boarding schools for the past 5 years living in dormitories with at least 20 other teenage young men and playing three contact sports at a varsity level. Yes, he has had his share of infections, but they are all treatable with antibiotics.
I, with my wife?s concurrence, believe its better to live a full a life as possible, taking reasonable risks, as opposed to not taking any risks and no living as full a life as possible.
I too have an immune deficiency and have been infusing IViG for over 25 years. I've have more than my share of infections, but I don?t think I?d trade my life for not enduring the infections and living a more sheltered existence.
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08-13-2006 @ 2:29 PM
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How old is your son and what deficiency does he have ? My daughter is 15 months and we are awaiting her labs back checking for any form of PI. She is in daycare and she is sick all the time ! She has adenovirus right now, with an ear infection.
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08-15-2006 @ 2:00 PM
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My son is two. We are trying to find a way to survive with the cost to us about $700.00 a month after our insurance it is hard trying to find a way to make it work! He is just getting over his second exstreme upper respitory infection in the last month. It has been hard. I have pulled him out of daycare and for now his grandparents are watching him but it is just short term. My husband and I are trying to find a way for me to be home with him. But with the news of the cost it is going to be hard!!!! Good luck!!!! 
This message was updated on 8-21-06 @ 1:21 PM
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09-18-2006 @ 9:23 PM
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I learned a little trick for dealing with the high cost of co-pays. Most insurances cover homehealth care 100%, but charge you a co-pay for outpatient infusion. The hospital running the outpt services division is, trust me, making money off what they get from insurance. I just called the business dept a few years ago and told them if they'd write off my co-pay I'd continue my infusions there. If not, I'd go with home health which was free. They don't know about home care limits or availability, so agreed right away. I've never paid a co-pay!
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