The Immune Deficiency Foundation offers peer support groups in 22 states. You can call them at 1-800-296-4433 or go to there website: www.primaryimmune.org. Their Director of Patient Services is Jennifer Bass and she should lead you to the closest support group or help you find the tools you need to start a new one. Good luck!
My daughter’s PI has left us strapped financially, but I would love to do something really special for her. I’ve heard a lot about the Make-a-Wish Foundation, but I think they only fulfill ‘wishes’ for kids whose illnesses have been determined terminal. Does anyone know if they offer programs for kids who are chronically ill, but not terminal?
02-26-2002 @ 3:35 PM
