INFO4PI - National Primary Immunodeficiency Resource Center
Home  » Message Board Hotline 1-866-INFO-4-PI
Search: 
Kids at table
Jeffrey Modell Foundation
Jeffrey Modell Foundation
JMF In The News
Contact Us
Understanding PI
About PI
PI Awareness Campaign
Patient Information
Expert Locator
Living with PI
Message Board
Survey
World Immunodeficiency Network
Professional Medical Information
Jeffrey Modell Immunology Center
Conferences
Scientific Publications
SPIRIT Analyzer



Welcome to the Message Board
login
join
search

moderated by Admin  Reply to Discussion | New Discussion << previous || next >> 
  Discussion Topic: XLP

book mark this topic Printer-friendly Version  new posts last

04-20-2005 @ 4:45 AM                          
reply
edit
  Hi  I was just wondering if I could find any other families with X-linked lymphproliferative syndrome.  Both of my sons were diagnosed with the disease.  My younger son passed away 12/23/2002 at the age of 10.  My older son is recovering from a bone marrow transplant done 5/2004.  He is 14.  I am adopted, so I didn't know that anything ran in my family.  I carry the gene.  I was wondering if any familiy with XLP might be where I came from.  I was born 5/24/1971.  I would love to know.  I want to meet other families too.

Privacy Statement / Disclaimer  Public Service Announcement