I was trying to find your topic on myspace and could not find it. I have a 3 year daughter with selective IGA deficiency and live in the the Indy area. I would really like to talk to you, our stories seem very similar. Please if you read this, email me at joelee2@insightbb.com Thanks Nancy
its been a while since anyone posted but i wanted to share that im in a web forum support group in a parenting forum. some of the parenting forums have special needs sections and if you try posting in them you might be supprised how many are arround.
Newly diagnosed 43 y/o male here in South Florida. I was diagnosed with SID (Specific Immuno Deficiency.) My infection of choice has always been in my sinuses, although I've had episodes of Giardia infections as well. Already had my first infusion with the Sub-Q Vivaglobulin. It wasn't as bad as I thought it was going to be. We'll see how it goes doing it once a week. I was having to take anitbioitics just about once a month to keep from getting low fevers, malaise, and of course the congestion. For years I have battled the mucus. I started the Sinus Rinses/Nasonex spray twice a day which together totally rock. They have been very beneficial...I recommend them highly. If anyone wants to talk about this condition, email me at jackfarinas@comcast.net. Jack
11-20-2007 @ 1:15 PM
