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Scientific Publications
Welcome to the Scientific Publications section. Read about the PI community's ongoing efforts in research and diagnosis of Primary Immunodeficiency diseases.

To view one of the articles listed below, click the logo image or the headline link. Some of the articles are in PDF format which will require that you have Adobe® Reader® installed on your computer to open the file. If you do not already have it, click here to download it for free.

 
Global Study of Primary Immunodeficiency Disease (PI) - Diagnosis, Treatment and Economic Impact: An Updated report from the Jeffrey Modell Foundation
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The purpose of the document is to aid physicians who care for children and adults with primary immunodeficiency in the practical aspects of diagnosis of immunodeficiency and immunoglobulin replacement therapy.
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Human Immune Globulin Proteins Essential in Treating Rare Disorders
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Human SCID (Severe Combined Immunodeficiency) is a prenatal disorder of T lymphocyte development, that depends on the expression of numerous genes. The knowledge of the genetic basis of SCID is essential for diagnosis (e.g., clinical phenotype, lymphocyte profile) and treatment (e.g., use and type of pre-hematopoietic stem cell transplant conditioning).

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The Jeffrey Modell Foundation organized the international Union of Immunological Society (IUIS) Expert Meeting on PI, in Dublin.
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From genotype to phenotype. Further studies measuring the impact of a Physician Education and Public Awareness Campaign on early diagnosis and management of Primary Immunodeficiencies.
Fred Modell ▪ Diana Puente ▪ Vicki Modell
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Immunologic Research Letter to the Editor.
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The economic impact of undiagnosed Primary Immunodeficiency patients to the healthcare system in the United States totals over $40 billion annually.
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Legacies from Dr. Good:
1) An unwavering commitment to research.
2) An encourage and support new technology that can target disease.
3) Commit our support to the most advanced academic medical centers in the world, pursuing excellence wherever that resides.
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Learn more about the dramatic increase in diagnosis and treatment of PI and the success of the Physician Education and Public Awareness Campaign.
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Physician experts report a dramatic increase in diagnosis and treatment of PI. Learn about the successful Physician Education and Public Awareness Campaign.
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Did you know that the economic impact of undiagnosed PI patients can cost the United States Healthcare System as much as $40 BILLION dollars per year? This study compares undiagnosed and diagnosed patients with PI.
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Primary immunodeficiency diseases (PIDs) are a genetically heterogeneous group of disorders that effect distinct components of the innate and adaptive immune system, such as neutrophils, macrophages, dendritic cells, complement proteins, natural killer cells, and T and B lymphocytes. The study of these diseases has provided essential insights into the functioning of the immune system. More than 120 distinct genes have been identified, whose abnormalities account for more than 150 different forms of PID.
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On December 8, 2005, Fred Modell, Co-Founder of JMF, delivered the keynote address to about 150 attendees at the annual Council for Harvard Medicine. Highlighted, were new discoveries and scientific developments relating to immunology. He also examined how new medical breakthroughs are creating important developments in vaccines, transplantation, and a wide variety of diseases relating to immune response.

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Timeline of Discovery of Major Types of PI and Major Advances in Treatment and Scientific Understanding from 1922-2004.
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Key Issues Dialogue - Featuring Peter Turner and Vicki and Fred Modell
In late August, Fred and Vicki Modell, founders of the Jeffrey Modell Foundation and Peter Turner, President of ZLB Behring and Chairman of the Board of Directors of the Plasma Protein Therapeutics Association, sat down for a free-wheeling, on-the-record conversation about the state of the industry and the future of biological therapeutics.
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