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Have a seat! Thank you for coming to our neighborhood meeting! Today's topics of discussion are newborn screening, awareness, advocacy efforts, and Calls to Action.
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Let's start with our "Berlin Declaration." JMF received over 200 signatures from physicians in support of implementation of screening for
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Severe Combined Immunodeficiency around the world! Before we continue, it is time to read our informative press releases and
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other important documents so you're ready to join the discussion! Today’s meeting is adjourned but I am still here to answer any of your questions.
Newborn Screening
Early diagnosis saves lives! We are dedicated to continuing our journey to screen every newborn for Severe Combined Immune Deficiency (SCID), and T-cell Lymphopenia in all 50 states, and then around the world. Do you know if your state is currently screening newborns? Find out and see our maps below.
SCID Newborn Screening Status by State
Total Live Births in the United States Per Year = 3,968,667
Currently Screening
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State |
Live Births |
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Alabama |
58,167 |
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Alaska |
11,446 |
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Arizona |
85,600 |
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Arkansas |
37,832 |
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California |
494,705 |
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Colorado |
65,007 |
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Connecticut |
36,085 |
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Delaware |
10,831 |
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District of Columbia |
9,288 |
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Florida |
215,407 |
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Georgia |
128,748 |
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Hawaii |
18,987 |
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Idaho |
22,383 |
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Illinois |
156,931 |
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Indiana |
83,102 |
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Iowa |
39,094 |
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Kansas |
38,839 |
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Kentucky |
55,686 |
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Louisiana |
63,201 |
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Maine |
12,776 |
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Maryland |
71,953 |
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Massachusetts |
71,788 |
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Michigan |
113,489 |
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Minnesota |
69,159 |
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Mississippi |
38,634 |
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Missouri |
75,296 |
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Montana |
12,377 |
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Navajo Nation of Arizona |
1,650 |
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Nebraska |
26,095 |
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Nevada |
35,030 |
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New Hampshire |
12,396 |
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New Jersey |
102,575 |
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New Mexico |
26,354 |
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New York |
236,980 |
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North Carolina |
119,002 |
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North Dakota |
10,599 |
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Ohio |
138,936 |
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Oklahoma |
53,369 |
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Oregon |
45,155 |
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Pennsylvania |
140,921 |
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Puerto Rico |
36,486 |
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Rhode Island |
10,809 |
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South Carolina |
56,795 |
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South Dakota |
12,248 |
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Tennessee |
79,992 |
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Texas |
387,340 |
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Utah |
50,957 |
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Vermont |
5,975 |
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Virginia |
102,147 |
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Washington |
86,577 |
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West Virginia |
20,825 |
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Wisconsin |
66,649 |
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Wyoming |
7,644 |
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Total |
3,968,677 |
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Update on the implementation of Newborn Screening for SCID in the United States, as of August 2018:
- 50 states, the District of Columbia, and Puerto Rico are currently screening or are committed to full implementation, reaching a total of 3,968,667 newborns screened per year (100%). This total includes screening in the Navajo population in Arizona.
Click on our Current Newborn Screening Maps to enlarge!
This initiative is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number UG5MC28325.