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Have a seat! Thank you for coming to our neighborhood meeting! Today's topics of discussion are newborn screening, awareness, advocacy efforts, and Calls to Action.
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Let's start with our "Berlin Declaration." JMF received over 200 signatures from physicians in support of implementation of screening for
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Severe Combined Immunodeficiency around the world! Before we continue, it is time to read our informative press releases and
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other important documents so you're ready to join the discussion! Today’s meeting is adjourned but I am still here to answer any of your questions.
Press Releases
It’s always busy in the Global Village, and that’s why we want to share all the important activities and topics at the Town Hall. This is where you can find all of our press releases on global awareness, physician education, research, patient support, advocacy, and more.
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Virtual Balloon Launch Goes Viral Reaching 9 Million People
"We decided to create a Virtual Balloon Launch. We took a chance; hoping people would see the video. We would have been thrilled to reach 10,000 viewers. But this initiative went "viral" almost immediately, quickly reaching more than 1 million a day and still going strong." -Fred Modell, JMF Co-Founder
Read the full press release here.
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One Balloon, One Life Saved… Raising Awareness for Primary Immunodeficiency
"Let's raise the balloons together, as one strong voice to affirm our dedication, passion, and commitment to our mission… to raise awareness, improve diagnosis, and advocate for equal access to treatment of PI worldwide. One balloon… one life saved. All we're asking is for people to share and help create awareness" said Vicki Modell, Co-Founder.
- Jeffrey Modell Foundation Fulfills Commitment to Screen Every Newborn Baby For "Bubble Boy" Disease
- Jeffrey Modell Foundation Launches New PSA Campaign Creating Greater Awareness of Primary Immunodeficiency
- Jeffrey Modell Foundation Launches First CHILDREN!® Project
- Study Reveals $40 Billion in Potential Savings in Healthcare Costs
- Couple Extends Multi-Million Dollar Commitment to Screen Every Newborn Baby For "Bubble Boy" Disease
- Jeffrey Modell Foundation Awards $1 Million for Translational Research
- Too Sick to Dream?: Foundation Gives Children a Chance to Reach for Their Dreams
- Global Foundation Appoints Executive Director
- David W. Levinson “Sells Out” American Museum of Natural History at Jeffrey Modell Foundation 25th Anniversary Gala!
- Angel Flight Northeast Partners with Jeffrey Modell Foundation, National Campaign Launched
- Positive Changes for Primary Immunodeficiency Patients in Latin America
- Couple Makes Multi-Million Dollar Commitment to Screen Every Newborn Baby for “Bubble Boy” Disease
- Foundation Challenges African Physicians from 17 Countries to Implement Regional “Call to Action”
- Jeffrey Modell Foundation Joins with 20 Countries to Launch World Primary Immunodeficiency Week
- Jeffrey Modell Foundation Plans Historic Middle East Meeting
- Jeffrey Modell Foundation Hosts Middle East Summit
- Bill & Melinda Gates Foundation and Jeffrey Modell Foundation Announce Collaboration to Eradicate Polio Worldwide
- Foundation Joins with 32 Countries to Launch World Primary Immunodeficiency Week
- Latest Victims of Sequestration are Newborns! JMF Fights for SCID Babies
- Jeffrey Modell Foundation Hosts First Global Summit in Berlin
- “Berlin Declaration” Mandates Newborn Screening Globally
- Global Polio Study Begins
- “He’s a Kid” is not a Diagnosis, Could it be Primary Immunodeficiency?
- Why Newborn Screening has Economic Benefits
