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Join us at our Village Café! Have a seat, enjoy a coffee, and connect with people in the neighborhood. When you join us on Facebook and Twitter, you are becoming
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part of a growing community, sharing similar experiences and questions. This is a place to get to know one another, and you can even visit with Vicki and read her blog,
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"my inspiration, my words"… a great way to get the inside scoop on JMF and what inspires her. So get comfortable and enjoy making new friends!
Primary Immunodeficiency Resources
We have compiled a list of resources related to Primary Immunodeficiency that may help you on your journey. We hope you will find what you are looking for in one of the categories below.
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Relevant Resources
American Academy of Allergy, Asthma & Immunology (AAAAI)
Website: www.aaaai.org
American Academy of Pediatrics
Website: www.aap.org
African Society for Immunodeficiencies (ASID)
Website: www.asid-africa.org
Chronic Granulomatous Disease Association
Website: www.cgdassociation.org
Clinical Immunology Society (CIS)
Website: www.clinimmsoc.org
Coordination of Rare Diseases at Sanford (CoRDS)
Website: www.sanfordresearch.org/cords
Dina LaVigna Breath of Life Triathlon
Website: www.facebook.com/BreathOfLifeTriathlon
Diseases Conditions.com
Website: www.diseasesconditions.com
European Society for Immunodeficiencies (ESID)
Website: www.esid.org
Federation of Clinical Immunology Societies (FOCIS)
Website: www.focisnet.org
Genetic Alliance
Website: www.geneticalliance.org
I.G. Living Magazine
Website: www.igliving.com
Immune Deficiency Foundation (IDF)
Website: www.primaryimmune.org
International Nursing Group for Immunodeficiencies (INGID) Website: www.INGID.org
International Patient Organization for Primary Immunodeficiencies (IPOPI) Website: www.ipopi.org
THE J PROJECT
Website: www.thejpnetwork.com
Latin American Society for Immunodeficiencies (LASID)
Website: www.lasid.org
March of Dimes Foundation
Website: www.modimes.org
Patient Notification System (PNS))
Website: www.patientnotificationsystem.org
My Ig Source
Website: www.myigsource.com
Patient Services Incorporated (PSI)
Website: www.patientservicesinc.org
Plasma Protein Therapeutics Association (PPTA)
Website: www.pptaglobal.org
The Painted Turtle (A Seriousfun Camp)
Website: www.thepaintedturtle.org -
Health and Government Related Agencies
Centers for Disease Control and Prevention (CDC)
Website: www.cdc.gov
Centers for Medicare and Medicaid Services (CMS)
Website: www.cms.gov
Health Insurance Resource Center for Families, Individuals, and the Self-EmployedWebsite: www.healthinsurance.org
Health Resources and Services Administration (HRSA)
Website: www.hrsa.gov
MEDLINEplus
Website: www.medlineplus.gov
National Cancer Institute (NCI)
Website: www.nci.nih.gov
National Heart, Lung, and Blood Institute (NHLBI)
Website: www.nhlbi.nih.gov
National Human Genome Research Institute (NHGRI)
Website: www.genome.gov
National Institute of Allergy and Infectious Diseases (NIAID)
Website: www.niaid.nih.gov
National Institute of Child Health and Human Development (NICHD)
Website: www.nichd.nih.gov
National Institutes of Health (NIH)
Website: www.nih.gov
National Library of Medicine
Website: www.nlm.nih.gov
National Marrow Donor Program (BE THE MATCH)
Website: www.bethematch.org Office of Public Health Genomics
Website: www.cdc.gov/genomics
National Organization for Rare Diseases (NORD)
Website: www.rarediseases.org
Patient Advocate Foundation
Website: www.patientadvocate.org
Patient Notification System
Website: www.patientnotificationsystem.orgPubMed
Website: www.ncbi.nlm.nih.gov/pubmed
Rare Diseases Clinical Research Network (RDCRN)
Website: www.rarediseasesnetwork.org -
Home Healthcare, Pharmaceutical Companies & Plasma Manufacturers
Accredo
Website: www.accredo.com
ADMA Biologics
Website: www.ADMAbiologics.com
WWW.ASCENIV.COM ASCENIV(immune globulin intravenous,human-slra)10% Liquid
WWW.BIVIGAM.COM BIVIGAM(immune globulin intravenous,human)10% Liquid
ADMA ADvantage Patient Support Program
https://www.asceniv.com/ADvantageIg-Patient-Support-Program.pdf
ASD Healthcare
Website: www.asdhealthcare.com
AxelaCare
Website: www.axelacare.com
Binding Site
Website: www.thebindingsite.com
BioRx
Website: www.biorx.net
Biotest
Website: www.biotest.com
BPL (Bio Products Laboratory)
US Website: www.bpl-us.com
UK Website: www.bpl.co.uk
Chiesi
Website: chiesirarediseases.com
Corinthian Health Services
Website: www.corinthianhealth.com
CSL Behring
Website: www.cslbehring.com
CSL Behring Patient Assistance Program
Hizentra Co-Pay Relief Program
Storytelling Hub Vita!
CSL NOW App for Smart Phones via Google Play and iTunes
CVS Caremark
Website: www.caremark.com
ENZYVANT
Website: www.enzyvant.com
Enzyvant Connect for patients: www.rethymic.com
GlaxoSmithKline
Website: www.gsk.com
Grifols
Website: www.Grifols.com
Gamunex Connexions Co-Pay and Patient Assistance Programs
Xembify Connexions Co-Pay and Patient Assistance Program
Horizon Therapeutics (ACTIMMUNE®)
Website: www.HorizonTherapeutics.com
Patient Assistance Programs COMPASSSM and Good Days
CGD Connections | Physician Video Resource | Expert Physician Locator
IgG America
Website: www.iggamerica.com
Kedrion
Website: www.kedrion.com
LFB Biomedicaments
Website: www.lfb.fr
New York Blood Center
Website: www.nybloodcenter.org
Novo Nordisk
Website: www.novonordisk.com
Octapharma
Website: www.octapharma.com
CoPay Assistance Program: 800-554-4440
PerkinElmer
Website: www.perkinelmer.com
Pfizer
Website: www.pfizer.com
Pharming
Website: www.pharming.comTakeda
Website: www.Takeda.com
MyIgCoPayCard: MyIgSource.com
X4 Pharmaceuticals
Website: www.x4pharma.com