There are Primary Immunodeficiency Patients Organizations all around the world for you to join. They provide support, knowledge, and a social environment for patients and families to learn from each other’s journeys and experiences.

INTERNATIONAL

Argentina
AAPIDP–Asociacion de Ayuda al Paciente con Immunodeficiencia Primaria
www.aapidp.com.ar
info@aapidp.com.ar

Australia
IDFA–Immune Deficiency Foundation Australia
www.idfa.org.au
info@idfa.org.au

Austria
ÖSPID–Österreichische Selbsthilfegruppe primärer Immum Defekte
www.oespid.at
modl.karin@gmx.at

Belarus
Save the Immunity
save-immunity
Andron116@yandex.ru

Bosnia
POsPID - Podrška Osobama sa Primarnim Imunodeficitima
www.pospid.org.rs/sr/
dzenita.subasic@sos-ds.ba

Brazil
ANPIC–Associação Nacional dos Portadores de Imunodeficiência Primária Congênita
www.anpic.org.br
anpic@anpic.org.br
BRAGID - Brazilian Group for Immunodeficiency
www.imunopediatria.org.br
info@imunopediatria.org.br

Bulgaria
Association of People with Congenital Immunodeficiency
stoil_lazarov@abv.bg

Canada
Immunodeficiency Canada / Immunodéficience Canada
www.immunodeficiency.ca
contactus@immunodeficiency.ca
CIPO–Canadian Immunodeficiencies Patient Organization
www.cipo.ca
Info@cipo.ca

Chile
Vida por la Vida
Corporación Chilena de ayuda para los Pacientes con Inmuno Deficiencias Primarias
vidaporlavida@gmail.com 

China
PID Care Centre in China
pidcare@163.com 

Colombia
Fundacion Diana Garcia de Olarte
www.fundacionfip.org.co
fundacionfip@gmail.com

Cyprus
Cyprus PI Association and Friends
Maria.g.charalambous@cyta.com.cy
Group of People with Congenital Immune Deficiency and Friends
www.facebook.com/Group of People with Congenital Immune Deficiency and Friends

Denmark
Immun Defekt Foreningen
www.idf.dk
Information@idf.dk

Ecuador
Fundación PIDE (Fundación de pacientes con Inmunodeficiencias Primarias - Ecuador)
Fundación PIDE - Facebook
fundacionpide.ec@hotmail.com

Egypt
Society of Nada for Egyptian Patients with Primary Immunodeficiency
shereenreda@med.asu.edu.eg

Estonia
Estonian Patient Society for Primary Immunodeficiencies
juhanliiva@gmail.com
Immuunpuudulikkuse Selts
immuunpuudulikkus@gmail.com | facebook.com/immuunpuudulikkus

Finland
Immunipuutospotilaiden Yhdistys RY
www.imppu.fi
puheenjohtaja@imppu.fi

France
IRIS–Immuno-Déficience Primitive Recherche Information Soutien
www.associationiris.org
info@associationiris.org

Germany
DSAI–Deutsche Selbsthilfe Angeborene Immundefekte e. V.
www.dsai.de
info@dsai.de

Greece
APMONIA–Association of Greek Friends for Pediatric Immunology - Primary Immunodeficiency
www.paed-anosia.gr
manolakakisch@windowslive.com

Galinos Immune Deficiency Association of Greece
www.galinossilogos.wixsite.com/galinos
galinos.silogos@gmail.com

Hungary
HOPI–Hungarian Patients' Group for Immunodeficiency
hzsu86@gmail.com

Iceland
Lind–Icelandic Organization
gmb@bhs.is | Onaemisgalli@onaemisgallar.is

India
IPSPI–Indian Patients Society for Primary Immunodeficiency
www.ipspiindia.org
rubbychawla@ipspiindia.org

Ireland
IPIA–Primary Immunodeficiency Association of Ireland
www.ipia.info
ipiasecretary@gmail.com

Israel
IFID–Israel Foundation for Inherited Immune Disorders
advgal@017.net.il
The Israeli Wiskott Aldrich Association
The Israeli Wiskott Aldrich Association - Facebook
office@was.org.il

Italy
AIP–Associazione Immunodeficienze Primitive
www.aip-it.org
info@aip-it.org

Japan
Tsubasa No Kai
www.npo-pidtsubasa.org
wingpost@npo-pidtsubasa.org

Latin American
ALAS (Iniciativa ALAS)
Alianza de Asociaciones de Inmunodeficiencias Primarias
IniciativaALAS.org
info@iniciativaalas.org

Lebanon
iFight PID Fund at AUBMC
iFightPID.org
info@ifightpid.org

Macedonia
Parent Organization of Children with Primary Immunodeficiency
kstavric@hotmail.com

Malaysia
Persatuan Pesakit Imunodifisiensi Primer Malaysia, MyPOPI 
Malaysia Patients Organization for Primary Immunodeficiencies
www.mypopi.org 
mypopi@yahoo.com.my

Mexico
Fundación Mexicana Para Niñas Y Niños con Inmunodeficiencias Primarias A.C. (FUMENI)
fumeni.org.mx
contacto@fumeni.org.mx

Netherlands
Stichting voor AfweerStoornissen
www.stichtingvoorafweerstoornissen.nl

New Zealand
IDFNZ–Immune Deficiencies Foundation of New Zealand
www.idfnz.org.nz
info@idfnz.org.nz

Nicaragua
ANIPIDP (Asociacion Nicaraguense de Pacientes Inmunodeficiencias Primarias)
facebook.com/anipidp
asociacion.anipidp@gmail.com

Norway
Norsk Immunsviktforening
www.immunsvikt.no

Peru
ASPAIP–Asociacion Peruana de Ayuda al Inmunodeficiente Primario
aspaipperu@outloock.com.pe
Saving Children with Agammaglobulinemia (Salvando A Los Niños Con Agammaglobulinemia)
www.savingagammaglobulinemiapatients.org
savingagammapatients@gmail.com

Poland
Immunoprotect–Association for Patients with Primary Immunodeficiency
www.immunoprotect.pl
biuro@immunoprotect.pl

Portugal
APDIP–Associacao Protuguesa de Doentes com Imunodeficiencia Primaria
www.apdip.pt
geral@apdip.pt

IPOPI–International Patient Organization for Primary Immunodeficiencies
www.ipopi.org
Info@ipopi.org

Romania
ARPID–Romanian Association for Patients with Primary Immunodeficiency
www.arpid.ro
arpid_life@yahoo.com

Russia
Sunflower–The Association for Primary Immunodeficient Patients
www.fondpodsolnuh.ru
fond@fondpodsolnuh.ru

Serbia
POsPID–Support of Persons with Primary Immunodeficiency
www.pospid.org.rs
contact POsPID

Slovakia
Združenie pacientov s primárnou imunodeficienciou
Slovak Association for PI patients
www.imunodeficit.sk
info@imunodeficit.sk

Slovenia
Društvo za pomoč otrokom z imunskimi boleznimi
Slovenian society for children with immune disorders
www.imuno.si
tadej.avcin@kclj.si

South Africa
PINSA–Primary Immunodeficiency Network of South Africa
www.pinsa.org.za
pinsahelp@mweb.co.za

South Korea
Primary Immunodeficiency Families Association (일차면역결핍증환우회- Korea) 
www.pidfan.ba.ro
pidsouthkorea@gmail.com

Spain
ABADIP–Associació Balear de Dèficits Immunitaris
www.abadip.com
info@abadip.com
ACADIP–Associació Catalana de Déficits Immunitaris Primaris
www.acadip.org
info@acadip.org
AEDIP–Asociación Española de Déficits Inmunitarios Primarios
www.aedip.com
aedip@aedip.com
Barcelona PID Foundation
www.pidfoundationbcn.org
pid_barcelona@pidfoundationbcn.org

Sudan
SOPPI–Sudanese Organization for Patients with Primary Immunodeficiency
SOPPI - Facebook

Sweden
PIO–Primaer Immunbrist Organisationen
www.pio.nu
info@pio.nu

Switzerland
SVAI–Schweizerische Vereinigung fur Angeborene Immundefekte
www.svai.ch
info@svai.ch

Tunisia
ATun-DIPs - Amélioration de la prise en charge des enfants Tunisiens atteints de
Déficits Immunitaires Primitifs
www.atundips.tn
contact@pasteur.rns.tn

Turkey
İmmün Yetersizlik - Türk İmmünoloji Derneği
www.İmmün Yetersizlik - Türk İmmünoloji Derneği.org.tr
turkimmunolojidernegi@gmail.com

United Kingdom
CGD Society–Chronic Granulomatous Disease Society
www.cgdsociety.org
hello@cgdsociety.org
The XLP Research Trust
www.xlpresearchtrust.org
PID UK–Primary Immunodeficiency UK
www.piduk.org
hello@piduk.org

United States
The CGD Association of America
www.cgdaa.org
info@cgdaa.org
Hereditary Angioedema Association
www.haea.org
Hyper IgM Foundation
www.hyperigm.org
info@hyperigm.org
IDF–Immune Deficiency Foundation
www.primaryimmune.org
idf@primaryimmune.org
LAPIN–Louisiana Primary Immunodeficiency Network
www.lapininc.org
lapin@lapininc.org
Nemo Foundation
andy@andy.org.mx
NEPIN–New England Primary Immunodeficiency Network
www.nepin.org
stan@nepin.org
SAPI-Stanford Alliance for Primary Immunodeficiency
www.primaryimmune.stanford.edu
SEPIN–Southeast Primary Immunodeficiency Network
cramos@medicalchampion.com
Wiskott Aldrich Syndrome Foundation
www.thewasfoundation.org
info@wiskott.org

Uruguay
AUPIDP–Asociacion Uruguaya de Pacientes con Immunodeficiencias Primarias 
AUPIDP Facebook
aupidp@gmail.com

Venezuela
ACIDP-Inmunodeficiencias Primarias Venezuela Asociación Civil
inmunodeficienciasprimariasvenezuela.com

Vietnam
VIET PIPS
facebook.com/Suygiammiendichbamsinh
vietpopi.new@gmail.com