Our Mission
The Jeffrey Modell Foundation is a global nonprofit organization dedicated to early diagnosis and treatments for Primary Immunodeficiency (PI). The Foundation supports these efforts through basic and clinical research, physician education, public awareness, advocacy, patient support, newborn screening, and genetic sequencing.
Our Focus
- Advancing Research
- We fund basic and clinical research to understand, treat, and find cures for PI through grants, fellowships, and endowed research positions.
- Expanding Education
- We provide global education and resources for PI diagnosis, treatment, and care through the Jeffrey Modell Centers Network.
- Championing Care
- We advocate for patients and families, connecting them to PI specialists and expert resources for diagnosis, treatment, and ongoing support.
- Raising Awareness
- We raise PI awareness through regional toolkits, physician education and resources for healthcare providers and families worldwide.
Our Values
- Education
- We advance understanding of PI through physician training, public awareness campaigns, and accessible resources that empower patients, families, and healthcare providers worldwide.
- Innovation
- We invest in research, genetic sequencing, and emerging technologies like AI to accelerate early diagnosis and develop better treatments for all PI patients.
- Compassion
- We champion every patient's journey with empathy and dedication, ensuring access to proper diagnosis, treatment, and support throughout their lives with PI.
- Collaboration
- We build global partnerships with physicians, researchers, patient organizations, and advocacy groups to amplify our impact and advance care for the PI community.