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  • Engage with the latest advancements in advocacy, education, and support for the Primary Immunodeficiency community.
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Newborn Screening

Thanks to years of tireless advocacy from our co-founders, countless families have been spared from heartbreak, and thousands of children have been given the opportunity to grow up and live full, healthy lives. Join us as we continue to raise awareness and advocate for newborn screening for SCID worldwide!

Don't see your country listed below? Use our template letter to contact your representatives.

In 2018, SCID screening was implemented nationwide—across all 50 states, Guam, Washington D.C., Puerto Rico, and the Navajo Nation.


Americas

Newborn Screening for Severe Combined Immunodeficiency (SCID) in Americas
Country AmericasPopulation Screening*Selective Screening†Pilot Programs‡
ArgentinaNoMendoza
BrazilYes
CanadaNoAlberta, British Columbia, The Maritimes, Manitoba, Nunavut, NW Territories, Ontario, Quebec, Saskatchewan, Yukon
ChileNoTemuco
United StatesYes

Asia

Newborn Screening for Severe Combined Immunodeficiency (SCID) in Asia
Country AsiaPopulation Screening*Selective Screening†Pilot Programs‡
ChinaNoIn Progress
JapanYesScreening in select areas (39 of 47 prefectures)None
Saudi ArabiaNoIn Progress
SingaporeYes
South KoreaNoIn Progress
TaiwanYes
TurkeyNoIn Progress
VietnamNoIn Progress

Europe

Newborn Screening for Severe Combined Immunodeficiency (SCID) in Europe
Country EuropePopulation Screening*Selective Screening†Pilot Programs‡
AustriaYes
BelgiumYes
Czech RepublicYes
DenmarkYes
FinlandYes2 of 3 hospital districts
FranceNoIn Progress
GermanyYes
IcelandYes
IrelandYes
ItalyNoTuscany
LatviaYes
NetherlandsYes
NorwayYes
PolandNoIn Progress
PortugalYes
RussiaYes
SlovakiaNoIn Progress
SloveniaYes
SpainYes
SwedenYes
SwitzerlandYes
UkraineYes
United KingdomNoBirmingham, GOSH London, Manchester, Newcastle, Sheffield, SE Thames

Middle East

Newborn Screening for Severe Combined Immunodeficiency (SCID) in Middle East
Country Middle EastPopulation Screening*Selective Screening†Pilot Programs‡
IsraelYes
LebanonYes

Oceania

Newborn Screening for Severe Combined Immunodeficiency (SCID) in Oceania
Country OceaniaPopulation Screening*Selective Screening†Pilot Programs‡
AustraliaYesAustralian Capital Territory, New South Wales, Queensland, South Australia, Victoria
New ZealandYes
  • * Indicates comprehensive, population-level screening.
  • † Indicates screening conducted selectively or for high-risk groups.
  • ‡ Indicates current or past pilot screening programs.
  • Note: Data as of March 2025.
  • Source: Jeffrey Modell Foundation

Global Newborn Screening Adoption

Explore the global landscape of newborn screening for Severe Combined Immunodeficiency (SCID). Hover over any country to see its screening status.

Screening Status

  • Population Screening(27)
  • Pilot Programs(8)
  • Selective Screening(5)
  • No Data Available(0)

Loading map...

Global Screening Impact

40
Countries with Screening
27
Population Screening
Nationwide Programs
8
Pilot Programs
Testing & Development
5
Selective Screening
Targeted Populations

Regional Adoption Rates, %

  • Illustrative Visualization:
    Label:
    Americas
    Value:
    9
    Visualization:
    Count:
    n = 5 of 57
  • Illustrative Visualization:
    Label:
    Asia
    Value:
    21
    Visualization:
    Count:
    n = 8 of 39
  • Illustrative Visualization:
    Label:
    Europe
    Value:
    44
    Visualization:
    Count:
    n = 23 of 52
  • Illustrative Visualization:
    Label:
    Middle East
    Value:
    13
    Visualization:
    Count:
    n = 2 of 15
  • Illustrative Visualization:
    Label:
    Oceania
    Value:
    7
    Visualization:
    Count:
    n = 2 of 29
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