Vicki's Corner / The Jeffrey Modell Foundation

In 2025, The Jeffrey Modell Foundation received the highest four-star rating from Charity Navigator for the 10th consecutive year, ranking #1 in Immunology out of 10,000 organizations evaluated worldwide.

Get the latest news from JMF and the Primary Immunodeficiency community worldwide.

Welcome to Vicki's Corner, a space where we share stories, updates, and reflections from across the global Primary Immunodeficiency community. From patient journeys to lab breakthroughs, this is where we stay connected and inspired together.

Patient Spotlight - Katie

July 21, 2026

Katie lived with years of chronic infections before being diagnosed with CVID at the age of 35. We're excited to share Katie's journey as our next Patient Spotlight!

Patient Spotlight Katie Picture.png

Please write a few sentences on your overall story living with PI.

I have CVID (Common Variable Immune Deficiency). I was diagnosed in 2017 at the age of 35.

How and when were you diagnosed? Which specific PI disease do you have?

I was diagnosed through a vaccine challenge after years of chronic infections including repeat pneumonia.

How has treatment impacted your life? How did you decide this was the correct treatment for you?

Weekly SCIG has helped me be a more present mom, wife, and teacher and given me hope for a healthier future.

Do you share your story with others online? If so, tell us what made you decide to do so.

Sometimes I share plasma donation requests.

The Global Education Network and Information Exchange (G.E.N.I.E.) grant was created in honor of the late Vicki Modell. G.E.N.I.E. funds educational programs with a focus on Primary Immunodeficiency to improve the quality of life of patients worldwide. G.E.N.I.E. furthers the Jeffrey Modell Foundation's mission to promote Primary Immunodeficiency awareness within healthcare systems, ensure proper access to treatment and care, and inspire cross-continental collaboration to save more lives.

Learn more about G.E.N.I.E.

Headquarters: Learn how JMF is “Doing Something”

Information Booth: Find an Immunologist and information about PI

Library: Educational materials and the 10 Warning Signs

Medical Academy: Access Research, grants, travel grants and more

WJMF News: Read breaking news and view our PSA campaign

Town Hall: Advocate with JMF about important PI topics

Village Park: Apply to WIN or have fun at the Kids Zone

Airport: Fly into our Airport and become a Dream Maker

Headquarters: Learn how JMF is “Doing Something”

Information Booth: Find an Immunologist and information about PI

Library: Educational materials and the 10 Warning Signs

Medical Academy: Access Research, grants, travel grants and more

WJMF News: Read breaking news and view our PSA campaign

Town Hall: Advocate with JMF about important PI topics

Village Park: Apply to WIN or have fun at the Kids Zone

Airport: Fly into our Airport and become a Dream Maker

Patient Spotlight - Katie

Please write a few sentences on your overall story living with PI.

How and when were you diagnosed? Which specific PI disease do you have?

How has treatment impacted your life? How did you decide this was the correct treatment for you?

Do you share your story with others online? If so, tell us what made you decide to do so.

From JMF

June 2026 ImmuNews

Get Involved

World PI Week: A Legacy of Courage and Hope

Navigating PI

Before a Primary Immunodeficiency Diagnosis

PI Defined

How Is Primary Immunodeficiency Diagnosed?