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News & Press Releases

Latest news and press releases from the Jeffrey Modell Foundation. Check back often for updates!

Breaking News

Ensoma’s Clinical Trial of In Vivo Gene Therapy for X-CGD

March 4, 2026
Breaking News

Apply for Grifols ASPIRE Award

February 4, 2026
Breaking News

Takeda Announces U.S. Availability of GAMMAGARD LIQUID ERC for Primary Immunodeficiency Patients

January 22, 2026
Press Release

Jeffrey Modell Foundation Awards $550,000 to Innovative Primary Immunodeficiency Research

January 21, 2026
Breaking News

FDA Approves First Gene Therapy for Treatment of Wiskott-Aldrich Syndrome (WAS)

December 16, 2025
Breaking News

Jeffrey Modell Foundation and Clinical Immunology Society Announce Vicki Modell Award

December 10, 2025
Breaking News

New Research Helps Speed Diagnosis for Rare Immune Disorder APDS

June 25, 2025
Breaking News

X4 Pharmaceuticals Announces International Enrollment Sites for Chronic Neutropenia Phase 3 Clinical Trial

October 14, 2024
Breaking News

Pharming Announces New Phase II Clinical Trial of Leniolisib for Primary Immunodeficiencies

October 11, 2024
Breaking News

Grifols receives expanded XEMBIFY® label in the United States

August 14, 2024
Press Release

Jeffrey Modell Foundation Launches GENIE Educational Grant

August 13, 2024
Breaking News

X4 Announces FDA Approval of XOLREMDI™ (mavorixafor) for Patients with WHIM Syndrome

April 29, 2024
Breaking News

Ireland Adds SCID to Newborn Screening Panel

February 14, 2024
Breaking News

CADTH Patient and Caregiver Input Survey - Leniolisib for APDS

November 22, 2023
Breaking News

JMF Receives Eighth Consecutive Four Star Rating from Charity Navigator

October 4, 2023
Breaking News

Heart of Genetic Counseling Award

May 3, 2023
Breaking News

Pharming Announces US FDA Approval of Joenja® to treat APDS

April 5, 2023
Breaking News

#RAREis Scholarship Fund Application

March 15, 2023
Breaking News

Jeffrey Modell Foundation to Partner with Veritas for Genetic Sequencing

February 14, 2023
Breaking News

Jeffrey's Insights Poster Presentation at RDCRN Fall Meeting

November 14, 2022
Breaking News

Slovakia Adds SCID to Newborn Screening Panel

November 7, 2022
Breaking News

British Columbia Adds SCID to Newborn Screening Panel

October 19, 2022
Breaking News

Pharming Announces US FDA Acceptance for Priority Review of its New Drug Application for Leniolisib

October 7, 2022
Breaking News

Russia Introduces SCID Newborn Screening Pilot

July 30, 2022
Breaking News

New ICD-10-CM Diagnosis Code for Activated PI3K Delta Syndrome (APDS) available October 1, 2022

July 30, 2022
Breaking News

Register for ESID 2022

July 30, 2022
Breaking News

Jeffrey Modell Foundation Receives Seventh Consecutive Four-Star Rating from Charity Navigator

July 30, 2022
Breaking News

Columbia University Gene Therapy Webinar on June 14, 2022

July 30, 2022
Breaking News

Dr. David Rawlings to Join XLA Life Fireside Chat on June 14, 2022

July 30, 2022
Breaking News

"New Opportunity" Clinical trial for Chronic, Congenital, or Cyclical Neutropenia

July 30, 2022
Breaking News

We Are Proud of Our Sixth Consecutive 4-Star Rating from Charity Navigator

July 30, 2022
Breaking News

Pharming Healthcare, Inc. announces the launch of a new disease awareness website, www.AllaboutAPDS.com, providing an educational resource to raise awareness of Activated PI3K Delta Syndrome, or APDS.

July 30, 2022
Breaking News

Exciting News for WHIM Patients!

July 30, 2022
Breaking News

Important Female X-Linked Chronic Granulomatous Disease Carrier Survey

July 30, 2022
Breaking News

Vote to Support "Stop XLA"

July 30, 2022
Breaking News

Please Wear a Mask!

July 30, 2022
Breaking News

Urgent Request for Plasma Donors! Plasma Donors Are Essential. Please Save a Life Today!!!

July 30, 2022
Breaking News

Vicki and Fred Modell: “Life is not about waiting for the storm to pass… it’s about learning to dance in the rain”

July 30, 2022
Breaking News

Ground Breaking News for Patients with LAD-1 deficiency!

July 30, 2022
Breaking News

Jeffrey Modell Foundation Reached Historic Breakthrough to Benefit Patients with Primary Immunodeficiency

July 30, 2022
Breaking News

Jeffrey Modell Foundation & Giving Tuesday Now

July 30, 2022
Breaking News

Takeda's Patient Assistance Response Initiative

July 30, 2022
Breaking News

Make your “When I Grow Up” poster!

July 30, 2022
Breaking News

Virtual Notes Lesson Plan!

July 30, 2022
Breaking News

Do Something Lesson Plan

July 30, 2022
Breaking News

Primary Immunodeficiency Lesson Plan!

July 30, 2022
Breaking News

Our New Publication: Global Expansion of Jeffrey’s Insights: Jeffrey Modell Foundation’s Genetic Sequencing Program for Primary Immunodeficiency

June 10, 2022
Breaking News

Chiesi Global Rare Diseases Announces Support for Jeffrey Modell Foundation's Global Genetic Sequencing Initiative "Jeffrey's Insights"

June 1, 2022
Breaking News

UCLA Researchers Develop Base Editing for CD3 delta SCID

May 17, 2022
Breaking News

NEW RESEARCH ARTICLE - SCID and Other Inborn Errors of Immunity with Low TRECs – the Brazilian Experience

May 3, 2022
Press Release

Angel Flight Northeast Partners with Jeffrey Modell Foundation, National Campaign Launched

April 18, 2022
Breaking News

Pharming Announces Positive Data from Phase II/III Leniolisib Trial for The Treatment of Activated PI3K Delta Syndrome

April 1, 2022
Breaking News

Jeffrey Modell Foundation's New Published Manuscript now available!

March 4, 2022
Press Release

Jeffrey Modell Foundation Awards $3.7 Million For Global Primary Immunodeficiency Research

June 19, 2018
Press Release

New SPIRIT® Software Will Save $42 Billion in Healthcare Costs with Early Detection of Primary Immunodeficiency

June 5, 2018
Press Release

Understanding the immune system offers remarkable opportunities for conquering diseases

May 16, 2018
Press Release

Jeffrey Modell Centers Network Sustains Vast Global Expansion

May 2, 2018
Press Release

Jeffrey Modell Foundation Celebrates Awareness Week by Highlighting Wishes & Dreams

April 17, 2018
Press Release

Jeffrey Modell Centers Network Continues To Reach New Heights with Vast Global Expansion

August 23, 2017
Press Release

Virtual Balloon Launch Goes Viral Reaching 9 Million People

May 3, 2017
Press Release

One Balloon, One Life Saved… Raising Awareness for Primary Immunodeficiency

April 21, 2017
Press Release

Jeffrey Modell Foundation Fulfills Commitment to Screen Every Newborn Baby For "Bubble Boy" Disease

May 16, 2016
Press Release

Jeffrey Modell Foundation Launches New PSA Campaign Creating Greater Awareness of Primary Immunodeficiency

January 12, 2016
Press Release

Jeffrey Modell Foundation Launches First CHILDREN!® Project

November 18, 2014
Press Release

Study Reveals $40 Billion in Potential Savings in Healthcare Costs

November 10, 2014
Press Release

Couple Extends Multi-Million Dollar Commitment to Screen Every Newborn Baby For "Bubble Boy" Disease

October 21, 2014
Press Release

Jeffrey Modell Foundation Awards $1 Million for Translational Research

September 16, 2014
Press Release

Why Newborn Screening has Economic Benefits

December 16, 2013
Press Release

“He’s a Kid” is not a Diagnosis, Could it be Primary Immunodeficiency?

December 4, 2013
Press Release

Global Polio Study Begins

November 18, 2013
Press Release

“Berlin Declaration” Mandates Newborn Screening Globally

November 14, 2013
Press Release

Jeffrey Modell Foundation Hosts First Global Summit in Berlin

July 18, 2013
Press Release

Latest Victims of Sequestration are Newborns! JMF Fights for SCID Babies

April 29, 2013
Press Release

Foundation Joins with 32 Countries to Launch World Primary Immunodeficiency Week

April 22, 2013
Press Release

Bill & Melinda Gates Foundation and Jeffrey Modell Foundation Announce Collaboration to Eradicate Polio Worldwide

November 28, 2012
Press Release

Jeffrey Modell Foundation Hosts Middle East Summit

June 26, 2012
Press Release

Jeffrey Modell Foundation Plans Historic Middle East Meeting

May 7, 2012
Press Release

Jeffrey Modell Foundation Joins with 20 Countries to Launch World Primary Immunodeficiency Week

April 23, 2012
Press Release

Foundation Challenges African Physicians from 17 Countries to Implement Regional “Call to Action”

March 7, 2012
Press Release

Couple Makes Multi-Million Dollar Commitment to Screen Every Newborn Baby for “Bubble Boy” Disease

February 1, 2012
Press Release

Positive Changes for Primary Immunodeficiency Patients in Latin America

October 12, 2011
Press Release

David W. Levinson “Sells Out” American Museum of Natural History at Jeffrey Modell Foundation 25th Anniversary Gala!

June 2, 2011
Press Release

Global Foundation Appoints Executive Director

March 7, 2011
Press Release

Too Sick to Dream?: Foundation Gives Children a Chance to Reach for Their Dreams

January 19, 2011
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