On October 1, 2022, a new diagnosis code for APDS, D81.82, will be available.

Multiple patient advocacy groups, disease foundations, and specialty society groups, along with Pharming Group N.V, were involved in supporting the new diagnosis code. Diagnosis codes allow greater specificity for providers and payers to gather information about patients’ conditions and treatments.

The newly established diagnosis code will:

  • Support healthcare providers, researchers, and policymakers in appropriately categorizing patients suffering from APDS
  • Measure the safety and efficacy of care for patients with APDS
  • Aid in research and monitoring of APDS and its progression
  • Facilitate care in the management of APDS
  • Assess healthcare costs for APDS