For the last 27 years, JMF has advocated for Primary Immunodeficiency and accomplished so much to be proud of, mandatory NBS in several US states, discovering new genes, building centers around the globe, and so much more.
One moment in which I was particularly proud of our community was this past World Primary Immunodeficiency Week. The Jeffrey Modell Foundation held its annual photo contest, where JMF centers send in pictures of their Balloon Launch Tribute, with their own creative personalized touches. The first place winner receives funds to create a “feel good” event for their current patients and their families. In the past, people have used the funds to throw parties, or educational seminars. The first place winner also receives a grant award to commend their hard work and dedication to their patients.
However, this year, winner Dr. Shereen Reda, from Ain Shams University in Cairo, Egypt, did something very special. She obtained IVIG for patients in which treatment was a financial hardship. She worked tirelessly to receive additional IVIG, including forgoing her personal prize, in order to further stretch the reach of her winnings and spreading her compassion.
This gesture, completely selfless in nature, is the epitome of what JMF stands for, going above and beyond to help others in need. It’s moments like these that truly inspire me, for not only are we helping patients and their families, but knowing we have an amazing network of passionate and caring doctors and nurses who share our dream of one day curing PI worldwide – and for that I couldn’t be prouder.
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Dr. Shereen Reda’s winning photo entries.