November is National Family Caregivers Month! Family caregivers make a tremendous difference in the lives of those with Primary Immunodeficiency. Join us in celebrating these unsung heroes who are ...
Today kicks off International Plasma Awareness Month! Plasma-derived medicines are essential for treating chronic, life-threatening diseases like Primary Immunodefic...
This World PI Week, along with the Immune Deficiency Foundation and our #WeArePI collaboration, we are focused on improving the quality of life for people living with Pri...
Next week marks the start of Primary Immunodeficiency Awareness month, which culminates in World Primary Immunodeficiency Week (WPIW) from April 22 – 29! Please join our ongoing efforts to spread a...
Save the date: February 23 – 29th, 2024 is Rare Disease Week! Please join our ongoing efforts to educate our global community, spread awareness, and advocate for rare diseases, especiall...
Every year it takes over 130 plasma donations to treat just one patient with Primary Immunodeficiency. A wonderful way to give back and get involved on Giving Tuesday is to sign up...
Today marks the beginning of the 10th annual International Plasma Awareness Week (IPAW)! This week, our goal is to raise awareness about the importance of plasma donation, encourage new ...
International Plasma Awareness Week (IPAW) is coming up! The tenth annual awareness campaign will be celebrated from October 2 – 6, 2023.There is currently an increased need...
Take action! There are many ways to get involved and share the importance of newborn screening, this month and beyond:Share your story! If you’re a parent whose child has been impacted ...
September is Newborn Screening Awareness Month! We hope you’ll join all of us at the Jeffrey Modell Foundation in our ongoing efforts to advocate for newborn screening across the globe.Throu...
Today is World Blood Donor Day! This year’s theme is Give blood, give plasma, share life, share often. We urge everyone who meets the donor criteria to donate bloo...
Today is World Caring Day! Now more than ever, it’s so important to show kindness and care for others. Simply asking someone how they’re doing can make a world of a difference, especial...
Each year during World PI Week (WPIW), we’re reminded of our history and the significance of this global awareness week. Everything we do is motivated by love, earnest devotion, and motivation to f...
In honor of WPIW at the end of the month, we’re excited to share our next #WeArePI challenge: share what a “day in the life” following diagnosis looks like....
Today we’re excited to announce the first monthly challenge of our #WeArePI campaign: How do you explain living with a rare disease to people who don’t understand it?We challenge you to shar...
February 22 – 28th, 2023 is Rare Disease Week! We hope you’ll join all of us at the Jeffrey Modell Foundation in our ongoing efforts to educate our global community, spread awareness, an...
We are pleased to announce our new collaboration with the Immune Deficiency Foundation (IDF) that aims to encourage the Primary Immunodeficiency community to raise awareness, share stories, and inv...
October marks Health Literacy Month. This month, health leaders and organizations across the US are working to encourage people and organizations to make health information accessible and easy for ...
Today marks the start of the 10th annual International Plasma Awareness Week (IPAW)! This week, we aim to raise awareness for plasma donation, recognize donors, and increase public knowledge about ...
In keeping with our mission of Doing Something, we encourage our community members to speak up, act, and advocate for newborn screening for SCID if their countries don’t alr...
International Plasma Awareness week will be here before we know it! We wanted to remind our community to join the global effort to screen potential plasma donors and support confirmed donors betwee...
We’ve heard time and time again from our community that people say, “you don’t look sick.” We are committed to sharing Jeffrey’s story with the world to encourage earliest possible diagnosis, and u...
Today is World Blood Donor Day! This year’s theme is “Donating blood is an act of solidarity. Join the effort and save lives.” We urge everyone who meets the donor criteria to join us in ans...
As Jeffrey began to experience the recurring infections typical of Primary Immunodeficiency, our lives became a whirlwind of hospitals and doctors’ offices. There were some treatments available, bu...
As many of you know, September is Newborn Screening Awareness Month, and JMF has long been an advocate to include Severe Combined Immune Deficiency (SCID), and T-cell Lymphopenia as mandatory condi...
Wow. World Primary Immunodeficiency Week 2015 has come to a close, and what an amazing and inspiring week it was!Thank you, to all of you, who helped make this year so special. Whether it wa...
I’ve always loved flowers; there are so many different kinds, with different colors, shapes, and sizes – just like people!Let’s take the time to honor those who mean so much to us and w...