Over the past 30+ years I have had the privilege, although sometimes bittersweet, of meeting families who have been affected by Primary Immunodeficiency and other rare diseases.
Recently I met Maggie Shaw, and we connected instantly mother to mother. She expressed her motivation to begin her own journey to “do something” for her daughter Aunika in a beautiful letter that brought me to tears, but at the same time, made me smile because I could feel her strength, her fortitude, her courage, and most of all, her all-consuming, unconditional, fierce and powerful love for her daughter, Aunika.
I have shared that often times I can feel Jeffrey imploring me to “do something and do something more” and I knew after reading her note that it was my duty to “do something” and share this with all of you…