World Primary Immunodeficiency Week 2016 is rapidly approaching and I am getting very excited for a week of celebrating the Primary Immunodeficiency community!

It’s amazing to see how WPIW has grown! It’s been three years since its global recognition and implementation, and this week of awareness has become a wonderful and uplifting symbol of hope for the future of patients everywhere!

Last year was the first time I participated and celebrated WPIW.  I had heard wonderful stories and seen many great pictures from past events, and I was excited to experience it for myself.

I was truly blown away by the amount of support we received!  There were so many people joining together and embracing the community –physically at JMF Global Balloon Launch sites, as well as through our social media channels by planting Appreciation Garden Flowers, attending the JMF Virtual Party and “Bursting the Bubble” about PI!

Aligning yourself with such an important cause and message of support and hope is something I’ve found to be very special.

There’s an expression… “From the outside looking in you could never understand it… and from the inside looking out you could never explain it.”  This perfectly describes my WPIW experience… I never realized how fulfilling participating in an event like this would be, and for someone who is never short on things to say... trying to describe it isn’t as easy as I thought! 

This will be my second WPIW and now that I’ve experienced the celebrations, I am even more excited for 2016!  I encourage all of you to participate in WPIW in any way you can! You can hold your own event, you can participate in a JMF initiative, or you can spend time with someone you know who is affected by Primary Immunodeficiency.  That’s the best thing about support… the options are infinite and nothing is too small!

Join in on the fun by selecting a Jeffrey Modell Foundation initiative below, and together let’s make World Primary Immunodeficiency Week 2016 the biggest, best, and brightest we can!
     * Appreciation Garden
     * “Burst the Bubble” About PI