Above all, we at the Jeffrey Modell Foundation are dedicated to supporting our global patient community. It’s our goal to make life easier, reduce burdens, and enable as many people as possible to enjoy a better quality of life.
We are proud to share the vast number of patient resources available on our website that serve as guides at any stage of your journey with Primary Immunodeficiency. Below, we’ve compiled a list of our top-requested resources that encourage earliest possible diagnosis, education, and expert care. These resources can be shared with parents, friends, school communities, and anyone else you think would benefit from learning more about PI:
- Need an immunologist? Find an expert near you on our interactive world map.
- It can be overwhelming to understand the unknowns of PI. Our FAQs can point you in the right direction.
- Curious about your specific defect? We’ve compiled a list of specific types of PI to encourage better understanding of your disease.
- Looking for activities and community support? Find a patient organization(s) in your region or apply for a WIN grant.
- A great way to educate your friends, family, and peers about PI is by watching our documentary “Do Something: The Jeffrey Modell Story,” now available on YouTube.
- Have a question about your pharmaceutical product(s)? Find patient guides and resources from our pharmaceutical partners here.
- Our “Roots & Wings” program provides travel support to patients and their families who may require medical treatment and care far away from home. Learn more about how to apply here.
It’s our hope that these materials—which are updated frequently—will help to improve PI management, care, and ultimately, save more lives. Please share them with your own community!