Our research efforts continue to reach new heights! This past month we received the highest number of tests for our “Jeffrey’s Insights” gene sequencing program, as well as our seventh consecutive four-star rating from leading non-profit evaluator, Charity Navigator. Read on for more Updates from the Lab!

Jeffrey’s Insights: Gene Sequencing Program
As of June 30th, 2022:

  • Total of 2,526 patients tested (US - 625, INT – 1,901)
  • Total variants identified – 16,924

Translational Research Program
Cycle 10 of our Translational Research Program continues to move forward. We invited 16 investigators to submit full applications in early July, and consideration is now underway. Grants will be awarded by November 18, 2022.

Specific Defect
There are currently 39 Specific Defect Research Grants in progress. Awards are granted on a rolling basis throughout the year ($1,782,136 total to-date).

c.h.i.l.d.r.e.n!
There have been 25 awards made to date ($980,057 total). Awards are granted on a rolling basis throughout the year.

Breaking News 

  1. The Jeffrey Modell Foundation received our seventh consecutive Four-Star Rating from America’s leading non-profit evaluator, Charity Navigator! This is the highest possible rating from Charity Navigator. The four-star rating signifies that the Jeffrey Modell Foundation demonstrates strong financial health, a commitment to accountability and transparency, and adheres to sector best practices to execute our mission in a financially efficient way. Only 10% of the charities evaluated have received at least 7 consecutive 4-star evaluations, indicating that the Jeffrey Modell Foundation outperforms most other charities in America. 
  2. The Australian government has recommended adding Severe Combined Immunodeficiency (SCID) to State and Territory newborn screening programs. Early diagnosis is key to providing life-saving treatments to children born with SCID.

The application was supported by AusPIPS Inc. and the JMF Center for Primary Immunodeficiencies Melbourne. This announcement will save numerous babies in Australia!