Jeffrey came into our lives very wanted and very cherished. His first ten months of life were peaceful and happy. He was a beautiful baby! But just before his first birthday, Jeffrey was diagnosed with hypogammaglobulinemia. We were devastated, and in an instant, our world was shattered.
Courage and humor were Jeffrey’s great assets. His determination was inspiring! Jeffrey survived and bounced back many, many times. Sadly, one final life-threatening bout of pneumonia took his precious life in 1986.
We knew we couldn’t let his life be in vain. In the spirit of his optimism and courage, we created the Jeffrey Modell Foundation - not in memory of his death, but in celebration of his life, and to give life.
We are proud to support sons and daughters worldwide through our Roots & Wings program, World Immunodeficiency Network, KIDS Days, ongoing advocacy efforts, and “Jeffrey’s Insights” genetic sequencing program. Thousands of newborn babies and young children with life-threatening conditions have been screened, diagnosed, transplanted, and cured!
Our efforts are motivated by the love and passion that Jeffrey’s legacy has inspired, and continues to encourage, thirty-five extraordinary years later. To all of the sons and daughters living with PI, know that we are here to support you, advocate for you, and ultimately, find cures for you.