Newborn screening saves lives! We’ve proved it time and time again—with a simple test, more diseases can be identified, treated early, and sometimes, even cured. Many Primary Immunodeficiencies are asymptomatic at birth and may go undetected without proper testing.
We’ve seen success stories like Charlie’s, Dawson’s, and more, and we won’t stop advocating for newborn screening until severe combined immunodeficiency (SCID) is included on every newborn screening panel worldwide. There are currently 18 countries conducting population screening, six countries conducting screening in select areas, and many others who are piloting screening programs.
Looking to get involved? Use your voice to take action and speak to your representatives by using our template letter about adding NBS for SCID to your country’s newborn screening panel to save more lives. Over 40 million babies have been screened in the United States alone…imagine what this number could be on a global scale?
To learn more about our newborn screening efforts, read here.