Tomorrow is Rare Disease Day, the rarest day of the year! We hope you’ve enjoyed learning more about the rare disease community over the past few days. To round off the week, we want to share a few statistics with you that are easy to distribute to your own community:
- A disease is considered rare when it affects fewer than 1 in 2,000 people.
- There are 300 million people living with a rare disease worldwide.
- To date, 7,000 rare diseases have been identified across the globe.
- 72% of rare diseases are genetic, including Primary Immunodeficiency.
- 70% of rare diseases start in childhood.
Looking to improve awareness? Read and share the 10 Warning Signs of PI, available in over 50 languages, or any of our patient support programs detailed on our website.