February 22 – 28th, 2023 is Rare Disease Week! We hope you’ll join all of us at the Jeffrey Modell Foundation in our ongoing efforts to educate our global community, spread awareness, and advocate for rare diseases.
Rare diseases aren’t so rare: they impact an estimated 300 million people worldwide and 72% of rare diseases are genetic. Primary Immunodeficiencies alone are estimated to affect at least 10 million people globally, and for years, we’ve seen how our community persistently advocates for themselves and their peers despite the challenges they may face.
Throughout the week we’ll be sharing new educational resources and narratives about the importance of proper diagnosis and treatment, access to care, ongoing research efforts, and ways to get involved to support the rare disease community.
Rare Disease Week ends on February 28th, the rarest day of the year! We hope you’ll join us on our mission to spotlight rare disease patients worldwide and provide hope for a better future. Be sure to check back for more updates later this month.