Did you know that early diagnosis saves the United States healthcare system $97,488* per patient? Not only does early diagnosis save lives and improve quality of life, but it also saves money! 

The cost of care is a significant burden for many families faced with a Primary Immunodeficiency diagnosis. For many people living with a suspected PI, the diagnostic odyssey can be lengthy, inefficient, and expensive because of ongoing medical costs. In addition, next generation sequencing, which may result in improved outcomes or treatment, is often inaccessible because of cost or insurance reasons. 

It’s so important to raise awareness about the benefits of early diagnosis, including the estimated savings to the healthcare system, patients, and families! Learn more about the cost of care in our most recent Jeffrey Modell Centers Network publication, available here

*Based on results from our Jeffrey Modell Centers Network Physician Survey, published in 2022.