Back to school with Primary Immunodeficiency can be challenging, but we’re here to help! Read below for this month's #WeArePI tips, in collaboration with the Immune Deficiency Foundation, about how to talk to school nurses about PI, arrange meetings, develop a healthcare plan, and implement it for your child’s specific needs. Let’s ensure a safe and supportive school year for all children!
Arrange a Meeting with the School Nurse
Considering how rare some conditions are, including PI, there is a strong chance the school nurse has never heard of their condition. It’s important to arrange a meeting with the school nurse and possibly other staff members who will be working closely with the student. Parents should bring along any educational material about the condition as well as a list of things to look out for and when the parents should be notified (i.e., a disease outbreak, etc.).
Develop a Plan
Once the nurse is fully aware of the student’s health issues, they can work with the parents to develop a plan (such as a 504) to communicate new medical information between home and school. Some items included in the plan might be to involve family members in all decisions regarding the child’s care, provide short-term care for acute injuries or illnesses, administer pre-approved medications to the child, and perform required healthcare procedures.
Implement the Plan
Once the school year starts, the plan should be put into action. The plan for the child’s healthcare while at school should be tailored to the child’s specific needs. Allowing the school nurse to play a role in their care will ensure that they’re being looked out for while away from home.
IG Living Magazine, August-September 2024 Issue, Jessica Leigh Johnson