November is National Family Caregivers Month! Family caregivers make a tremendous difference in the lives of those with Primary Immunodeficiency. Join us in celebrating these unsung heroes who are ...
Today kicks off International Plasma Awareness Month! Plasma-derived medicines are essential for treating chronic, life-threatening diseases like Primary Immunodefic...
This World PI Week, along with the Immune Deficiency Foundation and our #WeArePI collaboration, we are focused on improving the quality of life for people living with Pri...
We are delighted to dedicate this year’s World PI Week (WPIW) to the memory of our co-founder, Vicki Modell, global patient advocate and leader of WPIW. The global celebration starts today, April 2...
Next week marks the start of Primary Immunodeficiency Awareness month, which culminates in World Primary Immunodeficiency Week (WPIW) from April 22 – 29! Please join our ongoing efforts to spread a...
Save the date: February 23 – 29th, 2024 is Rare Disease Week! Please join our ongoing efforts to educate our global community, spread awareness, and advocate for rare diseases, especiall...
To our Primary Immunodeficiency community:Thank you for sharing your wonderful messages, memories, and heartwarming comments about our late Co-Founder, Vicki Modell. To know that...
Every year it takes over 130 plasma donations to treat just one patient with Primary Immunodeficiency. A wonderful way to give back and get involved on Giving Tuesday is to sign up...
Today we are thrilled to announce our newest PSA campaign! For nearly twenty years, the Foundation’s iconic “When I Grow Up” PSA campaign has encouraged public awareness for Primary Immunodeficienc...
Welcome back to another edition of Updates from the Lab! This past month we received our eighth consecutive four-star rating from leading non-profit evaluator, Charity Navigator and our research pr...
Today marks the beginning of the 10th annual International Plasma Awareness Week (IPAW)! This week, our goal is to raise awareness about the importance of plasma donation, encourage new ...
As Newborn Screening Awareness month comes to a close, we want to extend a heartfelt thanks to you, our global PI village, for your constant support, kindness, and devotion to our ongoing efforts. ...
Today, we are honored to celebrate our beloved son, Jeffrey Modell, on his birthday. As we look back, it was Jeffrey who created the passion for our work. His determination and courage were inspiri...
International Plasma Awareness Week (IPAW) is coming up! The tenth annual awareness campaign will be celebrated from October 2 – 6, 2023.There is currently an increased need...
Take action! There are many ways to get involved and share the importance of newborn screening, this month and beyond:Share your story! If you’re a parent whose child has been impacted ...
International Plasma Awareness Week (IPAW) will be here before we know it! Get ready by purchasing our "Plasma Donors Save Lives" t-shirt, available now. Wear your plasma t-shirt during IPAW, Octob...
Today kicks off Newborn Screening Awareness month! For years, we lobbied in Washington D.C. to add Severe Combined Immunodeficiency (SCID) to the national newborn screening panel. Without proper di...
For the past few months, we’ve been hard at work on a big project behind the scenes…our new PSA campaign! Inspired by the opportunity to grow up and pursue your dreams while living with...
We know that so many of you are getting ready to head back to school, so now is a great time to stock up on your JMF merchandise!All of the proceeds from our
September is Newborn Screening Awareness Month! We hope you’ll join all of us at the Jeffrey Modell Foundation in our ongoing efforts to advocate for newborn screening across the globe.Throu...
In honor of National Science Week, this week we’ll be sharing more about our research programs, treatments for Primary Immunodeficiency, the importance of exercise and diet, and mo...
In this month’s edition of Updates from the Lab, we’re proud to share recent progress across our three research programs and “Jeffrey’s Insights” genetic sequencing program.Research ...
We are back with another edition of Updates from the Lab! Read on for news about newborn screening, our genetic sequencing program, and research updates. Breaking News
Have you spotted our When I Grow Up… PSA campaign on a billboard or bus shelter near you? Perhaps in the airport or even in a shopping center?The vibrant colors and p...
Today is World Blood Donor Day! This year’s theme is Give blood, give plasma, share life, share often. We urge everyone who meets the donor criteria to donate bloo...
In November 2007, we were thrilled to open the doors of the Jeffrey Modell Immunology Center (JMIC) at Harvard Medical School. The center is a tribute to Jeffrey’s legacy, and our ongoing commitmen...
Today is World Caring Day! Now more than ever, it’s so important to show kindness and care for others. Simply asking someone how they’re doing can make a world of a difference, especial...
We are proud to share another edition of Updates from the Lab! We have been hard at work this year, and are pleased to share our recent breaking news, programming developments, and grant upd...
As WPIW 2023 comes to a close, we’d like to take this opportunity to share thanks to all of you, our global community of patients, families, physicians, nurses, and so many more, for your constant ...
Today we are thrilled to share a new spotlight interview with Fred Modell, co-founder of the Jeffrey Modell Foundation. Fred shared details about the history of World PI Week, the importance of awa...
As we continue to celebrate WPIW and honor the patients, families, physicians, nurses, and so many other members of our community worldwide, we are delighted to feature our World Immunodeficiency N...
Each year during World PI Week (WPIW), we’re reminded of our history and the significance of this global awareness week. Everything we do is motivated by love, earnest devotion, and motivation to f...
In 2017, we were approached by an award-winning film team who asked if we would share the story of Jeffrey and the Foundation. We were honored and proud to share the extraordinary strength of our s...
World Primary Immunodeficiency Week (WPIW) is April 22 – 29! We hope you’ll join all of us at the Jeffrey Modell Foundation in our ongoing efforts to educate our global community, spread awareness,...
In honor of WPIW at the end of the month, we’re excited to share our next #WeArePI challenge: share what a “day in the life” following diagnosis looks like....
Today is World Doctor’s Day, what a noble profession! We are proud to celebrate all doctors, but especially the doctors in our Jeffrey Modell Centers Network, who work tirelessly each day to improv...
In 2019, we introduced our no-cost genetic sequencing pilot program, “Jeffrey’s Insights,” for patients within the Jeffrey Modell Centers Network (JMCN) living with an underlying Primary Immunodefi...
Welcome back to the March issue of Updates from the Lab! We are thrilled to share our most recent sequencing updates, breaking news, and information about our research programs. ...
Today we’re excited to announce the first monthly challenge of our #WeArePI campaign: How do you explain living with a rare disease to people who don’t understand it?We challenge you to shar...
February 22 – 28th, 2023 is Rare Disease Week! We hope you’ll join all of us at the Jeffrey Modell Foundation in our ongoing efforts to educate our global community, spread awareness, an...
We are pleased to announce our new collaboration with the Immune Deficiency Foundation (IDF) that aims to encourage the Primary Immunodeficiency community to raise awareness, share stories, and inv...
Happy New Year from all of us at the Jeffrey Modell Foundation! This year, our New Year's resolution is to Do Something MORE.As we embark on our 36th year of operation, we look forward to co...
On these final days of 2022, we want to extend a heartfelt thanks to our community of friends who make our global PI village more remarkable each passing year. You inspire and motivate us, and cons...
Since 1987, our core mission has been earliest possible diagnosis to save as many lives as we can. Without diagnosis, life expectancy for SCID patients is only one year, so implementing newborn scr...
We’re delighted to share our December issue of Updates from the Lab today! As we close out on our thirty-fifth year of operation, we’re grateful for the ongoing support of our Jeffrey Modell...
We’ve all been asked the question, “what do you want to be when you grow up?” For patients living with Primary Immunodeficiency, the chance to live full, healthy lives isn’t always guaranteed. ...
Over twenty years ago, we established the Jeffrey Modell Centers Network (JMCN) to meet the rising need for referrals and specialized centers for patients identified with Primary Immunodeficiency w...
When we started the Foundation in 1987, one of our priorities was to make sure that no other child living with Primary Immunodeficiency would have to be alone. We created Kids with...
In 2019, we proudly introduced our no-cost genetic sequencing pilot program, “Jeffrey’s Insights,” for patients within the Jeffrey Modell Centers Network (JMCN) living with an underlying PI but no ...
Today is Giving Tuesday! We are proud to recognize the extraordinary efforts of our global community today, and every day. A wonderful way to do good this Giving Tuesday is to sign up to donate pla...
As we sprint towards the end of the year, we’re excited to share the November issue of Updates from the Lab! Read on for this month’s breaking news, research updates, and our recent poster p...
We’re back with another issue of Updates from the Lab! Read on for this month’s breaking news and background on our three research programs. Breaking News <...
October marks Health Literacy Month. This month, health leaders and organizations across the US are working to encourage people and organizations to make health information accessible and easy for ...
We created the World Immunodeficiency Network (WIN) in 2001 with the goal of providing support, encouragement, and funding opportunities to national and international patient organizations, physici...
Today, we'd like to introduce you to one of our Associate Directors of Marketing and Communications, Stephanie, in the newest installment of our "Get to Know JMF" series.Why did you ...
Today marks the start of the 10th annual International Plasma Awareness Week (IPAW)! This week, we aim to raise awareness for plasma donation, recognize donors, and increase public knowledge about ...
Today would have been Jeffrey’s 52nd birthday. He came into our lives very wanted and very cherished. How could we know that he would only be with us for 15 years? In honor of his life, legacy, cou...
As we enter the final stretch of the year, we’re proud to share some of the incredible results we’ve seen to-date across our research programs as well as our ongoing efforts to support investigator...
October 3rd - 7th, 2022 is International Plasma Awareness Week! Please join the Jeffrey Modell Foundation in our efforts to screen potential plasma donors and support confirme...
September is Newborn Screening Awareness month! We’re looking forward to
sharing more about our lobbying efforts and advocacy this month, starting with
our histor...
In keeping with our mission of Doing Something, we encourage our community members to speak up, act, and advocate for newborn screening for SCID if their countries don’t alr...
International Plasma Awareness week will be here before we know it! We wanted to remind our community to join the global effort to screen potential plasma donors and support confirmed donors betwee...
Jeffrey came into our lives very wanted and very cherished. His first ten months of life were peaceful and happy. He was a beautiful baby! But just before his first birthday, Jeffrey was diagnosed ...
Today we'd like to introduce you to our Scientific Director, Jessica, in the newest installment of our "Get to Know JMF" series! She oversees all things "science" at the Foundation: <...
Our research efforts continue to reach new heights! This past month we received the highest number of tests for our “Jeffrey’s Insights” gene sequencing program, as well as our seventh consecutive ...
We’ve heard time and time again from our community that people say, “you don’t look sick.” We are committed to sharing Jeffrey’s story with the world to encourage earliest possible diagnosis, and u...
Jeffrey sent us out alone on our journey in 1987, and since then, we have circled the globe. However, there is one constant no matter where we are: children and adults suffering from chronic, recur...
Today, we’re excited to introduce our community to Yolanda, our fabulous receptionist, in our “Get to Know JMF” series:Why did you decide to work at JMF?I was very excit...
We couldn’t let Jeffrey’s life be in vain; we knew we had to Do Something in celebration of his life, to give life. In the spirit of his optimism and courage, we created the...
The Jeffrey Modell Foundation has seen incredible outcomes so far this year! We are thrilled to share our first monthly “Updates from the Lab” report with our community. Below are the highlig...
Today is World Blood Donor Day! This year’s theme is “Donating blood is an act of solidarity. Join the effort and save lives.” We urge everyone who meets the donor criteria to join us in ans...
Jeffrey never knew how he would change our lives and the lives of so many thousands of children he would never meet, forever.We used to ask ourselves, would there ever be research that would...
After Jeffrey’s diagnosis, we saw hepatologists, hematologists, immunologists, rheumatologists, oncologists, and just about every other “ologist” that exists. At the time, there was no support or i...
We are thrilled to begin a new monthly series on the blog, "Get to Know JMF." Each month, we'll share a Q&A with one of our wonderful staff members so that you, our community, can get to know u...
As Jeffrey began to experience the recurring infections typical of Primary Immunodeficiency, our lives became a whirlwind of hospitals and doctors’ offices. There were some treatments available, bu...
Throughout his life, Jeffrey would say to us, “Do Something! You went to college. You’re smart!” And to his doctors, he would say, “Do Something. You’re smart. You went to medical school!” How hear...
My name is Yolanda and I have been afforded the most amazing opportunity to work with a wonderful organization called the Jeffrey Modell Foundation.I started here on Dec 2, 2019, and one of ...
I am so thrilled to introduce myself to the Primary Immunodeficiency community through this blog! My name is Katie and I am the newest addition to the Jeffrey Modell Foundation. While interviewing,...
As many of you know, we created the Jeffrey Modell Foundation because of Jeffrey’s plea for us to “Do Something!”Over the last 32 years, we have been inspired and motivated by his plea. What...
When Hollywood producers reached out to Vicki and me and said “you have to tell the story of Jeffrey and the Foundation”, I asked them… "why would anyone care?”I was flattered,...
As many of you know, September is Newborn Screening Awareness Month, and JMF has long been an advocate to include Severe Combined Immune Deficiency (SCID), and T-cell Lymphopenia as mandatory condi...
At the Jeffrey Modell Foundation, one of our greatest ambitions is to celebrate our limitless potential... to show that we're unstoppable... and we always aim to do this in a positive and cheerful ...
Advocacy can mean different things to different people.People all over the world are showing their loyalty and contributing towards causes that are meaningful to them, and then passing along...
World Primary Immunodeficiency Week 2016 is rapidly approaching and I am getting very excited for a week of celebrating the Primary Immunodeficiency community!It’s amazing to see how WPIW ha...
Every year athletes from all over come to Ventura California to participate in the Dina La Vigna “Breath of Life” Triathlon. The event was created in the loving memory of Dina LaVigna, a spec...
Estamos haciendo algo in Latin America!I have always been motivated by my son Jeffrey’s request to “Do Something!” and the Jeffrey Modell Foundation was created with that intention.On...
The beginning of the Foundation’s story starts with Jeffrey asking us to “Do Something!”You’ve heard our mission before, “to dedicate our efforts to early diagnosis, meaningful treatmen...
World PI Week 2015 was truly magical! The Global PI Community was truly united by “one voice, one mission” and we are in awe of the dedication, passion, and commitment from countries all over...
Wow. World Primary Immunodeficiency Week 2015 has come to a close, and what an amazing and inspiring week it was!Thank you, to all of you, who helped make this year so special. Whether it wa...