August 2025 – We’re celebrating National Science Week! At the Jeffrey Modell Foundation, science is at the center of our work. From identifying the gene...
November is National Family Caregivers Month! Family caregivers make a tremendous difference in the lives of those with Primary Immunodeficiency. Join us in celebrating these unsung heroes who are ...
Today kicks off International Plasma Awareness Month! Plasma-derived medicines are essential for treating chronic, life-threatening diseases like Primary Immunodefic...
For decades, Dr. Jennifer Puck, a professor of pediatrics at UCSF, has been a leading advocate for universal newborn screening to identify Severe Combined Immunodeficiency (SCID). Children with SCI...
This Newborn Screening Awareness Month, we’re shining a light on the crucial need for Newborn Screening for Severe Combined Immunodeficiency (SCID)! Read below for this month's #WeArePI collaborati...
Did you know that September is Newborn Screening Awareness Month? Join all of us at the Jeffrey Modell Foundation as we continue to champion newborn scr...
This World PI Week, along with the Immune Deficiency Foundation and our #WeArePI collaboration, we are focused on improving the quality of life for people living with Pri...
We are delighted to dedicate this year’s World PI Week (WPIW) to the memory of our co-founder, Vicki Modell, global patient advocate and leader of WPIW. The global celebration starts today, April 2...
Next week marks the start of Primary Immunodeficiency Awareness month, which culminates in World Primary Immunodeficiency Week (WPIW) from April 22 – 29! Please join our ongoing efforts to spread a...
Save the date: February 23 – 29th, 2024 is Rare Disease Week! Please join our ongoing efforts to educate our global community, spread awareness, and advocate for rare diseases, especiall...
Every year it takes over 130 plasma donations to treat just one patient with Primary Immunodeficiency. A wonderful way to give back and get involved on Giving Tuesday is to sign up...
Today we are thrilled to announce our newest PSA campaign! For nearly twenty years, the Foundation’s iconic “When I Grow Up” PSA campaign has encouraged public awareness for Primary Immunodeficienc...
Today marks the beginning of the 10th annual International Plasma Awareness Week (IPAW)! This week, our goal is to raise awareness about the importance of plasma donation, encourage new ...
As Newborn Screening Awareness month comes to a close, we want to extend a heartfelt thanks to you, our global PI village, for your constant support, kindness, and devotion to our ongoing efforts. ...
International Plasma Awareness Week (IPAW) is coming up! The tenth annual awareness campaign will be celebrated from October 2 – 6, 2023.There is currently an increased need...
Take action! There are many ways to get involved and share the importance of newborn screening, this month and beyond:Share your story! If you’re a parent whose child has been impacted ...
International Plasma Awareness Week (IPAW) will be here before we know it! Get ready by purchasing our "Plasma Donors Save Lives" t-shirt, available now. Wear your plasma t-shirt during IPAW, Octob...
Today kicks off Newborn Screening Awareness month! For years, we lobbied in Washington D.C. to add Severe Combined Immunodeficiency (SCID) to the national newborn screening panel. Without proper di...
For the past few months, we’ve been hard at work on a big project behind the scenes…our new PSA campaign! Inspired by the opportunity to grow up and pursue your dreams while living with...
We’re excited to share our latest #WeArePI collaboration with the Immune Deficiency Foundation (IDF): How do you prepare for a new school year?Primary Immunodeficiency is unpredictable and o...
September is Newborn Screening Awareness Month! We hope you’ll join all of us at the Jeffrey Modell Foundation in our ongoing efforts to advocate for newborn screening across the globe.Throu...
In honor of National Science Week, this week we’ll be sharing more about our research programs, treatments for Primary Immunodeficiency, the importance of exercise and diet, and mo...
Our immune system works 24 hours a day, 7 days a week to keep us healthy and strong! The immune system protects us from bacteria, infections, germs, and more. People living with Primary...
Have you spotted our When I Grow Up… PSA campaign on a billboard or bus shelter near you? Perhaps in the airport or even in a shopping center?The vibrant colors and p...
Today, we are delighted to celebrate National Nursing Assistants Day! Nursing Assistants play an integral role in caring for patients and their families and are dedicated to improving the quality o...
Today is World Caring Day! Now more than ever, it’s so important to show kindness and care for others. Simply asking someone how they’re doing can make a world of a difference, especial...
Today is International Nurses Day! We are proud and honored to celebrate our often-unsung heroes, our nurses. Their expert skills, comforting presence, love, and tenderness provide a sense of calm ...
Today we are thrilled to share a new spotlight interview with Fred Modell, co-founder of the Jeffrey Modell Foundation. Fred shared details about the history of World PI Week, the importance of awa...
Each year during World PI Week (WPIW), we’re reminded of our history and the significance of this global awareness week. Everything we do is motivated by love, earnest devotion, and motivation to f...
World Primary Immunodeficiency Week (WPIW) is April 22 – 29! We hope you’ll join all of us at the Jeffrey Modell Foundation in our ongoing efforts to educate our global community, spread awareness,...
Today is World Health Day! This year’s theme is “Health for All.”We know that barriers to care result in a prolonged diagnostic journey, without genetic evaluation, and sometimes, unknown di...
In honor of WPIW at the end of the month, we’re excited to share our next #WeArePI challenge: share what a “day in the life” following diagnosis looks like....
Our body’s number one defense from infections, germs, bacteria, and parasites is our immune system. Our immune system works 24 hours a day, 7 days a week to keep us healthy and strong! However, som...
To kick off Rare Disease Week 2023, we thought it would be helpful to provide a brief overview of rare diseases and answer some frequently asked questions. A rare disease is defined as,...
Today we’re excited to announce the first monthly challenge of our #WeArePI campaign: How do you explain living with a rare disease to people who don’t understand it?We challenge you to shar...
February 22 – 28th, 2023 is Rare Disease Week! We hope you’ll join all of us at the Jeffrey Modell Foundation in our ongoing efforts to educate our global community, spread awareness, an...
We are pleased to announce our new collaboration with the Immune Deficiency Foundation (IDF) that aims to encourage the Primary Immunodeficiency community to raise awareness, share stories, and inv...
We are proud to celebrate the 8th annual International Day of Women and Girls in Science (IDWGIS)! Please join us in honoring the extraordinary and brilliant women in our global communit...
On these final days of 2022, we want to extend a heartfelt thanks to our community of friends who make our global PI village more remarkable each passing year. You inspire and motivate us, and cons...
We’ve all been asked the question, “what do you want to be when you grow up?” For patients living with Primary Immunodeficiency, the chance to live full, healthy lives isn’t always guaranteed. ...
October marks Health Literacy Month. This month, health leaders and organizations across the US are working to encourage people and organizations to make health information accessible and easy for ...
In honor of International Plasma Awareness Week, we thought it would be helpful to share an overview of the differences between blood and plasma donations. The need for both types of donations is c...
Today marks the start of the 10th annual International Plasma Awareness Week (IPAW)! This week, we aim to raise awareness for plasma donation, recognize donors, and increase public knowledge about ...
We’re excited to share another installment of our physician interview series in honor of Newborn Screening Awareness month. Today, we’re sharing our recent conversation with Antonio Condino-Neto, M...
October 3rd - 7th, 2022 is International Plasma Awareness Week! Please join the Jeffrey Modell Foundation in our efforts to screen potential plasma donors and support confirme...
September is Newborn Screening Awareness month! We’re looking forward to
sharing more about our lobbying efforts and advocacy this month, starting with
our histor...
As we continue to spread awareness for Primary Immunodeficiency and newborn screening for SCID across the world, we are thrilled to share the news that earlier this year, the Australian government ...
In keeping with our mission of Doing Something, we encourage our community members to speak up, act, and advocate for newborn screening for SCID if their countries don’t alr...
International Plasma Awareness week will be here before we know it! We wanted to remind our community to join the global effort to screen potential plasma donors and support confirmed donors betwee...
Today we'd like to introduce you to our Scientific Director, Jessica, in the newest installment of our "Get to Know JMF" series! She oversees all things "science" at the Foundation: <...
Earlier this year, we published a new manuscript highlighting the growth and diagnosis and treatment of PI within the JMCN. Over the years we’ve developed a survey to send to members of the Jeffrey...
Throughout his life, Jeffrey would say to us, “Do Something! You went to college. You’re smart!” And to his doctors, he would say, “Do Something. You’re smart. You went to medical school!” How hear...
Go inside the Jeffrey Modell Foundation… as Thrive Global’s Ben Ari talks with its Co-Founders, Vicki and Fred Modell, as a part of his ongoing “individuals and organizations making an important so...
As many of you know, September is Newborn Screening Awareness Month, and JMF has long been an advocate to include Severe Combined Immune Deficiency (SCID), and T-cell Lymphopenia as mandatory condi...
World Primary Immunodeficiency Week 2016 is rapidly approaching and I am getting very excited for a week of celebrating the Primary Immunodeficiency community!It’s amazing to see how WPIW ha...
Every year athletes from all over come to Ventura California to participate in the Dina La Vigna “Breath of Life” Triathlon. The event was created in the loving memory of Dina LaVigna, a spec...
Estamos haciendo algo in Latin America!I have always been motivated by my son Jeffrey’s request to “Do Something!” and the Jeffrey Modell Foundation was created with that intention.On...
World PI Week 2015 was truly magical! The Global PI Community was truly united by “one voice, one mission” and we are in awe of the dedication, passion, and commitment from countries all over...
Wow. World Primary Immunodeficiency Week 2015 has come to a close, and what an amazing and inspiring week it was!Thank you, to all of you, who helped make this year so special. Whether it wa...
I’ve always loved flowers; there are so many different kinds, with different colors, shapes, and sizes – just like people!Let’s take the time to honor those who mean so much to us and w...
Last month, Fred and I travelled to Stockholm, Sweden.We were there to attend Frontiers in Immunology 2014, at the Nobel Forum, an invitation only meeting for the world leading physicians an...
Today is World Humanitarian Day! The aim of World Humanitarian Day is to celebrate the people who dedicate their lives to helping people and raise awareness of humanitarian assistance on a global s...
Newborn screening saves lives! We’ve proved it time and time again—with a simple test, more diseases can be identified, treated early, and sometimes, even cured. Many Primary Immunodeficiencies are...
Today is Global Day of Parents! We are delighted to celebrate all of the parents and parent figures in our global Primary Immunodeficiency community who work tirelessly to advocate for their childr...